Hi Kelly,
So clearly understand what you are experiencing. I had left temporal surgery in September 1999. As you mentioned, positive
results are super important. Prior to surgery, I had my seizures during the day and post surgery, they occur when asleep and it's
a couple of times a month. I am still on drugs too, presently Lamictal.
Current memory trouble is a clear result following surgery too. For this reason, I do not want to socialize with others too much since I get apprehensive about being able to successfully bluff it. I do not know what others think about this. The thought of weather it is going to get even worse with time really is on my mind a lot.
Prior to surgery, I did not have my license for a bit over 30 years
because of an accident that was the start of my seizures in 196l. Since my seizures are now only when asleep, I did get my license back.
Have nice weekend and remember we're all together.
Doris
--- In epilepsy@yahoogroups.com, Kelly Porter <kellyporter@...> wrote:
>
> Steve,
>
> I am not actually seizure free. I have about 2 a month, but compared to
> multiple seizures a day, I'll take it!
>
> As far as changes, I know I lost at least 14 IQ points. My short term
> memory is definitely affected. It took me over 2 years to adjust to the
> emotional side effects of having my amigdula removed, I now know what I
> can and cannot handle, and what situations to avoid or walk away from.
> Some people get upset at me because I walk away, but I knwo fi I don't I
> can get really mad. I also have pretty bad concentration issues. I get
> distracted really easy, put that with short term memory issues and it's
> a yucky combination. I have to make notes and lists for everything. My
> computer and Droid help me keep track of things. I have also developed
> light sensitivity issues, so I have to wear tinted glasses all of the time.
>
> Put the concentration issues and short term memory together, and I have
> decided I won't drive again even if I do become seizure free. I know
> that my distraction issues would make me unsafe! I am also still on
> Trileptal and Lyrica, but I did go off of Topamax which is awesome! The
> Lyrica also helps me with pain issues.
>
> Kelly
>
> On 3/31/2011 5:13 PM, Steve wrote:
> > Hi Kelly,
> >
> > Conratulations on being seizure free 3 years now (smile). Just wondering, in what ways have you noticed changes in you because of surgery?
> >
> > I had a LTL 4 years 5 months ago and I'm still seizure free. Tests show my cognitive abilities didn't get worse but I aware they did. I by my choice, decided not to reduce me mess. Because I feel they are a back up if a seizure trys to come through.
>
No comments:
Post a Comment