Hi Terry,
This subject over the years seems to rarely come up in this group for some reason. SUDEP (Sudden Unexplained Death in Epilepsy)is brought up more in other groups I'm in. The chances are very low, understanding our risk factors I've always thought where important to understand. Click below to read a EFA site on SUDEP. Take care, keep a smile on your face!
Steve
http://www.epilepsyfoundation.org/about/SUDEP/faqs.cfm
--- In epilepsy@yahoogroups.com, Terry Martin <trm0818@...> wrote:
>
> Hi Steve,
>
> I didn't realize that there is such a high death rate for people with epilepsy. How do most die? Are they in accidents, do they die from the seizures? Thanks for any information. Take care.
>
> Terry
>
>
>
> On Jun 28, 2010, at 5:31 PM, "Steve" <stephenpales@...> wrote:
>
> Hi Millie,
>
> Thank you for calling me on the phone Sunday letting me know about it on 60 minutes. I'm very glad they talked about death do to epilepsy. Its a simple fact that just as many people die because of epilepsy as they do to breast cancer. No reason to hide it. I know two people who I met in internet epilepsy support groups who died from because of epilepsy. I don't hide that fact from anybody I know. We can't simply pretend its not say serious as it really is. Take care, keep a smile on your face!
>
> Steve
>
> --- In epilepsy@yahoogroups.com, "Millie Myers" <mylmy@> wrote:
> >
> > Hi
> > everybody,
> >
> > Did any of you see the 13 min segment on 60 Mins last nite about Epilepsy?
> >
> > It was about the Axlerod's who started CURE --to get more money for curing EP. It was also
> > very informative about EP. The only thing I questioned was that it gave the impression that a
> > lot of people die from it.
> >
> > Millie
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>
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> [Non-text portions of this message have been removed]
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