Samiam,
I'm just one of All the guiney pigs,but I wonder if it's not a practice that doctors might continuously do to keep us coming back over and over to get a change to either the level of one of our medicines or to change from one medicine in our combination of drugs to another. I've been on 22+ different medicines since '74, I was only seeing a family doctor and took only dilantin and phenobarbital & was safe behind the wheel.I began to see a neurologist in '80,the Dilantin & phenabaritol was changed to Dilantin & other and on. Then, in '84 the Dilantin was changed to Tegretol for a few weeks,then something else with the other. Then Three medicines for twenty-two years. Then adifferent neurologist reduced my seizure freqency and my intake of medicines down to two medicines. Another neurologist changed those to what I'm now takeing and again improved the number of seizures to one every 9-13 weeks. I hope it will be improved again since my next
appoitment with a gret doctor is next monday in NY city.
Tim Baldwin
____________
From: Samiam <ambimind65@yahoo.
To: epilepsy@yahoogroup
Sent: Tue, May 4, 2010 11:20:08 AM
Subject: [epilepsy] Re: eliminating no possibility
Hello All.
I hope that your next decision will be the best and last. I don't know how many different med's you have tried over the years but look further into the VNS. I just had it planted 6 weeks ago after 20+ years of uncontrolled attacks and it seems to be working even though it is too early to be definitely certain.
Samiam
--- In epilepsy@yahoogroup s.com, Terry Martin <trm0818@... > wrote:
>
> Hi Kelly,
>
> I'm sorry to hear that the first surgery didn't work out for you. I think you are smart to look in to all your options before making a choice. I hope that you find one that will work well for you! Take care.
>
> Terry
>
> Sent from my iPhone
>
> On May 4, 2010, at 1:14 AM, Kelly Porter <kellyporter@ ...> wrote:
>
> I had my appointment with my epileptologist today, just shortly 2 years
> post op right temporal lobectomy. Today we discussed the fact that my
> seizures are once again progressing despite being on 3 meds. 4 options
> came up:
>
> -stay on meds do nothing else. not a good option as I will likely get
> worse and I don't want to sit down and admit defeat.
> -increase meds continualy. Poor option as my side effects are already
> hardly bareable and meds are obviously not cutting it.
> -VNS
> -A second surgery
>
> We have decided in order to really make the best decision we need we
> need to even know if I would be a surgical candidate. If I put in the
> VNS and it doesn't work well, it will make it more difficult to have a
> second surgery (though not impossible) and I will wonder if I should
> have done that instead. I need to know first if it's even a viable
> option. So that is what we do next--the VEG and we will go from there.
> So next up for me is either surgery number 2 or the VNS.
>
> Kelly P
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
[Non-text portions of this message have been removed]
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