My daughter (3) was on Tegretol for a year and a half. She had all sorts of problems, 1 being that the singulair she is on was making the Tegretol absorb too quickly in her liver. She was constantly getting blood drawn. Then Oct 09 we switched her to Trileptal 5mL 2x a day, b/c of the low risk of side effects. She has done great on it. Today was the only siezure she has had, being on Trileptal. Good luck!!
Amanda, mom to Erika 3 EP since 3 wks old
--- On Wed, 5/26/10, Mimi <mimiq_69@yahoo.com> wrote:
From: Mimi <mimiq_69@yahoo.com>
Subject: [epilepsy] Re: Advice on switching from Trileptal to Tegretol please
To: epilepsy@yahoogroups.com
Date: Wednesday, May 26, 2010, 7:43 PM
I have been on tegretol since I was 19.I am now 40.The side effects may or may not bother your daughter but to me it was worth being put on it.I have seizures now but that is because I have taken 2 meds for over 20 years and the d/c of the one med caused probms.If you are willing to try the tegretol go for it.
Mary
--- In epilepsy@yahoogroups.com, "cristinfilipuzzi7" <cristinfilipuzzi7@...> wrote:
>
> Hi. My daughter has been on Trileptal for about 3 months now. This is her
> first medication that she has been on. The doctor first prescribed her to go on
> Tegretol because I do not have coverage for Trileptal. Because of what I read
> about side effects on Tregretol, I chose to put her on Trileptal anyway. I
> cannot afford it. The doctor said that if she goes on Tegretol now and if she
> does have side effects then he can put her back on Trileptal and the government
> should pay for it. But if she does not try the Tegretol there is no chance of
> any coverage. Has anyone switched from Trileptal to Tegretal before? Does
> anyone have any advice please? Thankyou.
> Cristin
>
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