If keto worked for my daughter I would be preaching a different story. We did the diet at johns hopkins with dr kossoff and all we got out of it was the worst acid reflux you've ever seen. At the time julia was 4 months old and couldn't tell us she was in pain.
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-----Original Message-----
From: "anon" <teads613@netscape.net>
Date: Mon, 24 May 2010 21:29:11
To: <epilepsy@yahoogroups.com>
Subject: [epilepsy] Re: Ketogenic Diet Info / Experiences
Yes, that's my blog. My daughter is almost 18 now.
--- In epilepsy@yahoogroups.com, "Aina & Pat DeLorenzo" <aina-pat@...> wrote:
>
> THANKS JAN! That is very helpful. Will have to read more on there when time
> permits. Is that your blog? Or what is the main page to post or register?
> Lots of good info on here and I shared it with our friends who just started
> the Keto diet for their son.
>
>
>
> Aina & Pat DeLorenzo
>
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>_____
>
> From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com] On Behalf
> Of anon
> Sent: Sunday, May 23, 2010 4:06 PM
> To: epilepsy@yahoogroups.com
> Subject: [epilepsy] Re: Ketogenic Diet Info / Experiences
>
>
>
>
>
> We had an extremely positive response to the keto diet... since I already
> wrote our story, I hope you don't mind if I link it
> http://mombipolar613.blogspot.com/2009/12/4-magic-ketogenic-diet.html
> Jan
>
> --- In epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com> ,
> "pjd0525" <aina-pat@> wrote:
> >
> > Hello gang, We have often been urged to allow my daughters Neuroligists to
> implement the Ketogenic Diet as meds have failed to stop her SZ's. Although
> some alternate therapy has proven to be a big success we seek some feedback
> from those here who may have or whose family member may have tried this high
> fat diet program. Our daughter is now down to approx 16 to 23 G Mal's per
> month.
> >
> > A friend of ours whose child recently went on it and after 3 weeks is now
> seizure free for the last 8 days. We are familiar with the diet and hope to
> get your experiences good or bad. Thanks, Pat D.
> >
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
[Non-text portions of this message have been removed]
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