Re: [epilepsy] eliminating no possibility

 

Kelly,

My problem seems alittle like yours.In '96 I had an unsuccessful l. temporal lobotomy.My seizures remained at the same frequency one every 3-4 weeks,I never changed to a lesser amount of medicines.Untill I changed to a different neurologist who reduced my three medicines to just two,that reduced my frequency of seizures.Currently I'm on Vimpat and Keppra XP.Wonder if just one would create another drop in seizures.I've thought of having a secondary surgery,but haven't heard very much about it,or peoples success or unsuccess having it done.I remember back in '96 when VNSs were real new and my doctor asking me if I was interested in trying it.I said No.Surgery on brain wasn't any good,how was I going to get my neck cut open.VNS seems to have been quite a success since then.I'd like to hear any finding that you hear of.

Timothy Baldwin             
 
 
 
 

________________________________

From: Kelly Porter <kellyporter@frontiernet.net>
To: epilepsy@yahoogroups.com
Sent: Tue, May 4, 2010 2:14:19 AM
Subject: [epilepsy] eliminating no possibility

I had my appointment with my epileptologist today, just shortly 2 years
post op right temporal lobectomy. Today we discussed the fact that my
seizures are once again progressing despite being on 3 meds. 4 options
came up:

-stay on meds do nothing else. not a good option as I will likely get
worse and I don't want to sit down and admit defeat.
-increase meds continualy. Poor option as my side effects are already
hardly bareable and meds are obviously not cutting it.
-VNS
-A second surgery

We have decided in order to really make the best decision we need we
need to even know if I would be a surgical candidate. If I put in the
VNS and it doesn't work well, it will make it more difficult to have a
second surgery (though not impossible) and I will wonder if I should
have done that instead. I need to know first if it's even a viable
option. So that is what we do next--the VEG and we will go from there.
So next up for me is either surgery number 2 or the VNS.

Kelly P

[Non-text portions of this message have been removed]

__._,_.___

Reply to sender | Reply to group | Reply via web post | Start a New Topic

Messages in this topic (5)

Recent Activity:

• New Members 2

Visit Your Group

Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

.

__,_._,___