Tuesday, May 4, 2010

[epilepsy] Re: eliminating no possibility

 

Hello All.
I hope that your next decision will be the best and last. I don't know how many different med's you have tried over the years but look further into the VNS. I just had it planted 6 weeks ago after 20+ years of uncontrolled attacks and it seems to be working even though it is too early to be definitely certain.

Samiam

--- In epilepsy@yahoogroups.com, Terry Martin <trm0818@...> wrote:
>
> Hi Kelly,
>
> I'm sorry to hear that the first surgery didn't work out for you. I think you are smart to look in to all your options before making a choice. I hope that you find one that will work well for you! Take care.
>
> Terry
>
> Sent from my iPhone
>
> On May 4, 2010, at 1:14 AM, Kelly Porter <kellyporter@...> wrote:
>
> I had my appointment with my epileptologist today, just shortly 2 years
> post op right temporal lobectomy. Today we discussed the fact that my
> seizures are once again progressing despite being on 3 meds. 4 options
> came up:
>
> -stay on meds do nothing else. not a good option as I will likely get
> worse and I don't want to sit down and admit defeat.
> -increase meds continualy. Poor option as my side effects are already
> hardly bareable and meds are obviously not cutting it.
> -VNS
> -A second surgery
>
> We have decided in order to really make the best decision we need we
> need to even know if I would be a surgical candidate. If I put in the
> VNS and it doesn't work well, it will make it more difficult to have a
> second surgery (though not impossible) and I will wonder if I should
> have done that instead. I need to know first if it's even a viable
> option. So that is what we do next--the VEG and we will go from there.
> So next up for me is either surgery number 2 or the VNS.
>
> Kelly P
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

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