Monday, August 4, 2014

Re: [epilepsy] NEW TO GROUP

 

Simy,
 
I had grand mal szs until I was about 60 {not sure} but didn't have many.  Then they changed to something more  like complex partials.  My girls say my brain is scrambled for a few days.  I don't pass out. They started when I was PG with my second daughter.  Also had szs when I was PG with 3rd daughter.  I was about 32.  The Dr. decided that pregnancy and me don't go well together.  So I we decided to have my tubes tied.  We thought that would take care of the szs but when my last daughter was 2-- I had another sz.  That took me to South Bend—30 miles away.  That was the closest EEG machine at that time. 
 
I have been on Dilantin and Phenabab for over 20 years.  My last sz was Aug '12.  I had been sz free for 5 years.  Haven't had any since. I don't know why but we could tell that I had gone without meds for over 2 days.   I have 2 daughters who live in my town.  I now take my meds at 8 am and 8 pm.  One girl calls me about 45 min after 8 in the morning and the other calls me in the evening.  That has kept me on track.   I am now 82 and live in a retirement center.  I love it here.
 
Pat, thanks for keeping this going.
 
Millie
 
 
 
Sent: Monday, August 04, 2014 9:07 AM
Subject: Re: [epilepsy] NEW TO GROUP
 
 


Thank you Millie for sharing....
Your response is also helpful...
Would love to also know how you have been able to achieve control.....
 
With much appreciation
Simy
 
From: "'Millie Myers' mylmy@gogreencroft.net [epilepsy]" <epilepsy@yahoogroups.com>
To: epilepsy@yahoogroups.com
Sent: Monday, August 4, 2014 7:00:24 AM
Subject: Re: [epilepsy] NEW TO GROUP
 
 
Hi Simy
 
I had grand mal szs also when I was younger. I was a Stay at home Mom.
That has been 40 years ago or so—so I can't remember very well but it seems
it took about a week to feel like my normal self.  Mine were during the day.
I, too felt fatigued.
 
I had 3 daughters.  They would call their dad at work and he would come home
right away and I would wake up in bed.
 
But I do agree that it is different with different people.
Millie
 
 


Sent: Monday, August 04, 2014 5:12 AM
Subject: RE: [epilepsy] NEW TO GROUP
 
 
Hi Simy,
I used to get nocturnal GM seizures. I'd know because of a bitten tongue and a feeling of total fatigue. But being otherwise healthy and young (20s then), I would go to work and tell no-one (usually). But the feeling of complete fatigue would persist the whole day. But I could function OK so you could say that was normal day to day activity. Doesn't compare well to your question. But I'd say a general answer is it varies person to person.
The exercise question? I'd say the following day at least.
Robert
From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com]
Sent: 04 August 2014 02:13
To: epilepsy@yahoogroups.com
Subject: [epilepsy] NEW TO GROUP
Hello Everyone
I am the mother of a 24 year old with autism and epilepsy.
I have questions about seizures that my son can not answer due to his inability to communicate.
I am hoping that I could ask my questions here.
My first question is about a Grand Mal Seizure.
I would like to know about how long after the seizure is over does one return to normal day to day activities ? 
How does one feel the next day after a grand mal seizure ?
If there are exercise fans among you, when do they feel like exercising again ?
Thanks
Simy


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Posted by: "Millie Myers" <mylmy@gogreencroft.net>
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