Steve,
Maybe what FDA just approved earlier this week could be useful by people over
16y.o. having uncontrolled refractory partial seizures by providing a better
chance of curing my epilepsy.Potiga (ezogabine) which is the same as Trobalt
(retigabine) as it's referred to in Europe,is the first medicine that will work
to keep the brains potassium channel open.Allot of current medicines work toward
the sodium channel.Maybe they're targeting to wrong place in me.Afterward maybe
I'll start driving if its prescribed and it works.Its different than anything
I'd ever tried for 37 years. Timothy Baldwin
________________________________
From: Steve <stephenpales@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Fri, June 17, 2011 5:55:14 PM
Subject: [epilepsy] Re: change of medicatio
Hey, Mark,
Never say never about driving again'!!!!!!! You have only had epilepsy just 5
years now, that all, You have no way of knowing what the future will bring you!
Hey, in high school I never thought I would be able to survive as an adult
because of my learning disability. Then hell began when seizures began in 1975.
seizures couldn't get under control for the next 31 years. And now look back in
time at the reality of being at the same job coming on 24 years next month. And
this week hitting 4 2/3 years seizure free after my
LTL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Mark, how long have you been at your current job now? How many people do you
think would have loved to be working that long at the same job? Think of the
glass being half full, not half empty.
And besides that, maybe a cure for epilepsy will come one day? Or, maybe
something else down the rode might control your seizures? Take care, keep a
smile on your face!
Steve
--- In epilepsy@yahoogroups.com, "MarkB" <thebakist@...> wrote:
>
>
>
> Doris,
>
> I have pretty much given up hope of ever driving again. I have had epilepsy
>for five (?) years now, and have had seizures every four months like clockwork.
>The minimum for freedom from seizures here in VA is six months.
>
>
> I am moving back to NJ in a few months where the minimum period for freedom
>from seizures is 1 YEAR, but that is where I grew up and I miss my friends up
>there.
>
> --- In epilepsy@yahoogroups.com, "DorisY" <dorisellen@> wrote:
> >
> > I was wondering things about changing drugs we take. I have been on
> > Lamicatal for ages and take 400mg daily. I still get a couple of
> > nocturnal seizures during each month and experience super insomnia.
> > I am apprehensive about even asking for possible change because I kind
> > of think that would also mean a suspension of driving license for some period
>of time. Please share things you might have had with change of this kind.
>Thanks.
> > Doris
> >
>
[Non-text portions of this message have been removed]
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