[epilepsy] New to Group

 

Hi......my name is Sue and in November, 2010, I think I had a seizure as I had a
thunderbult/ligthening headache and noise/light was not tolerable for the entire
day.  When I went to drive to work, I couldnt' go over 40 when I normally can do
65 easily.  I was slurring my words all day and was out of it like I was drunk
and was confused all day.  I went to the hospital and my EEG showed slow brain
waves, and electrically irritated waves.  I started taking Depakote, and strong
headache meds.  However, I am now getting off of the Depakote as after 6 months,
I am having bad side affects.  Now my headaches are coming back.  My doctor is
going to put me on Neurontin as a transfer drug and then Lamictal to stabalize
my "auras" that I have where, at least once per month, I just stare and am out
of it for a minute.  Some days I get panic attack symptoms and my head hurts
really bad and I hear things lounder than normal.  IS WHAT I AM HAVING SEIZURES
as my doctors dont' know and I'm scared!  Besides EEG's, MRI's and CT
scans.....how can you be sure and what is the right medication that treats
severe headaches with complex partial seizures?  I want the least side affects -
no vision or hair loss

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From: wendy d <wdeb5@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Wed, June 15, 2011 11:40:34 PM
Subject: [epilepsy] Camp

 
Hi All,

I have not written in awhile, but I've been checking in and keeping (fairly)
updated on what's going on. I will be volunteering at a summer camp for a week
this summer as part of my "professional" (although I am still a student)
development. The camp is one for kids with chronic illnesses, a different
illness every week. Turns out, the ONLY week that is not full for female
counselors is epilepsy week. So I signed up. But...something makes me a little
anxious about this. I don't know why. It's definitely not about not wanting to
see people have seizures. It's something more selfish and personal, almost as
though I want it to be known that I am a person with epilepsy too...and yet I'm
not sure whether that is information I should be disclosing. Or why it matters.
I just wanted to kind of share my thoughts about this, because I'm not quite
sure what I'm nervous about, except that everything will be too close to home,
maybe.

Wendy

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[Non-text portions of this message have been removed]

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