Gaelic
Do you take other epilepsy meds or any meds besides the phenytoin? The brand name of phenytoin is dilantin and
that was the way I was on it and had to be changed. The sleeping for days, dizzy, and why I asked if taking
any other meds or have been on ep. meds for years trying to remember or what that silver box was used for this
is what I called being in a 'deep fog or on another planet somewhere in outer space'. At those times I barely
knew my name from my address, knew my hubby but don't ask me his name as I couldn't tell you.
Years lost of my life being in this outer space. As a result too my appetite was lost as, my stomach would
rumble, I would get up to go to the kitchen, but once in there not know what on earth doing in there. To me
this feeling was worse than having a seizure (GM). If you are not eating properly yes you may end up with
other health problems.
Gaelic, if you are not going to be seeing your doctor for a few weeks, can you call your druggist and find out
if this is normal. Make sure you tell him any other meds of any kind you are on as well. You don't want to end
up in the emergency room either and if gets much worse you may have to until your dr can see you.
Take care
keep smiling
Julie
Julie Hope
epilepsyhealth@
http://www.2betrhea
----- Original Message -----
From: "gaelic_darkwater" <gaelic_darkwater@
To: <epilepsy@yahoogroup
Sent: Saturday, May 02, 2009 11:25 PM
Subject: [epilepsy] "serious" side effets
I've been trying to find an answer to this for several days and can't seem to get a real answer anywhere, so
I'm hoping someone here has experience with this or knows someone who does and can give me an answer...
I'm having a LOT of problems with the side effects from the phenytoin. I looked the medicine up online and
the side effects are mostly listed as "serious", such as loss of balance, and dizziness, although I also have
blurred vision and EXTREME fatigue. (I have slept for DAYS at a time.) I also can't type anywhere NEAR as
easily as I once did and frequently misspell words or even forget words entirely. Not too long ago I stood in
my kitchen for nearly an hour struggling to remember what the big silver box was and how in the world it was
used. It was the microwave, which I use every day.
So what I need to know is, when they say "serious" how serious is it? Am I risking serious long-lasting
health problems (which I really can't afford added to these seizures) or do they just mean that these are
seriously irritating? What should I do? I can't get to my doctor for weeks still.
------------
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