Thanks, good explanation. I have felt the same way at times when I feel one come on. I think I can control it but reality is I miss some of it. I have had experiences when I'm alone and I know I follow most of it but other times I have found myself somewhere and I don't remember going there, usually several steps away from where I was. Its scary. Your not loosing your mind, it is just taking a break and disconnecting from reality for a moment. Your body goes into an automatic mode for a moment.
CBI
--- On Mon, 5/25/09, Staci Waites <swaites2003@
From: Staci Waites <swaites2003@
Subject: Re: [epilepsy] Fireworks show
To: epilepsy@yahoogroup
Date: Monday, May 25, 2009, 11:45 AM
My husband had an experience very similar to yours. It was night time and we were at an outdoor arena for a Trace Atkins concert. Everything was going great. Then, Trace began to sing "Every light in the house is on".....and every light on the stage came on. BOOM! No warning...nothing. ..full blown seizure.
To answer your questions based on my husbands E....
Is there a time frame from when the warnings begin to the onset of a
seizure?
Different seizures illicit different warnings for him...from the auras to his dog, it all depends. I wish there was a more definite time frame, it would allow us to be better prepared.
Do the warning signs signal that I may be easily triggered
into a seizure?
His warning sighs definitely signal that he may be easily triggered into a seizure. If he gets a warning, we have to take every precaution possible to calm his brain down or you can bet that he will seize. Sometimes it is so bad that I have to sedate him on Ativan just to ease him down.
Do not think that you cause yourself to have the seizures. However, panic attacks are often common with people with E because they are so afraid of what is about to happen especially if they have a warning. You may need to speak with your doctor about it. You are not loosing your mind. You experience alot of the same things my husband does.
Staci
--- On Mon, 5/25/09, Julie Smith/Brinkman <julies2go@yahoo. com> wrote:
From: Julie Smith/Brinkman <julies2go@yahoo. com>
Subject: [epilepsy] Fireworks show
To: epilepsy@yahoogroup s.com
Date: Monday, May 25, 2009, 10:23 AM
I thought I was done with the seizures. I am fourty-one and was diagnosed this year with epilepsy. I take keppra. I was at an A's baseball game and attended the fireworks show afterward. During the show I realized something was happening to me, it felt like a panick attack. I relocated myself out of the stadium and tried to breathe calmly. Things got worse, I was crying and hyperventilating. Then came the seizure.
I have noticed my warning signs this week (sensitivity to loud noise, feeling spacie and my dog warning me too) Is there a time frame from when the warnings begin to the onset of a seizure? or Do the warning signs signal that I may be easily triggered into a seizure?
I am angry that I can not control this thing that takes over my body. \\
I took the train back home that nignt and the movement of the train pulling away from the platform and the light of cars on the freeway freaked me out.
I do not think I should go to Las Vegas on vacation.
I am afraid that I am loosing my mind and that I am making these things happen?
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[Non-text portions of this message have been removed]
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