RE: [epilepsy] What are your favorite activites that don't involve epilepsy and has epilepsy affected how you do them?

 

Hi Sarah

I love reading, writing and using my pc, of course I like other things including listening to music. None of these things affect my epilepsy but I am blind too and if I have the pc monitor on or look at the screen, I use the different levels of light to recognise what my pc is doing when it is booting up, it causes me problems with epilepsy or even migraine, not quite sure why but it has an effect on me and I can get some very bad headaches. Also the sun comes in this room late in the day and it can be far too bright for me and I have to look away from it.

Regards

Adrien

-----Original Message-----
From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com]
Sent: Saturday, May 31, 2014 2:34 AM
To: epilepsy@yahoogroups.com
Subject: [epilepsy] What are your favorite activites that don't involve epilepsy and has epilepsy affected how you do them?

Note: I said affected how you do them, not stopped. For example I work with children with special needs. It has affected me only in needing to take an Ativan at times at work and in one or two seizures where I fell. I have had other seizures there but small enough that I didn't fall and am usually almost right after one. Not always coherent but usually.

I love family history, church, and reading.

What do you like to do? I guess the goal of this thread is to show those new to epilepsy or struggling with it that we can still do things.

Also a handicap and disability are not the same things. That stuck with me in a class I once took. Epilepsy is a disability at all times but only a handicap if it is stopping me from doing something-like driving.

How do you react to the term epileptic? I am fine if it is refering to epileptic seizures, since not all seizures are epileptic but not refering to who we are. Have you ever been told 'you don't look like you have epilepsy?' or some other thing that showed people's misunderstanding of it? I only have once and don't remember my reply.

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Posted by: "Adrien Collins" <adriencollins22160@gmail.com>

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