Re: [epilepsy] Intro.

 

Welcome to the group, sorry for the reason why.

I don't think any of us would say out diagnosis was easy, we all
experienced some sort of depression or anger. Eventually most of us
realize that epilepsy does not define who we are, and does not rule our
lives. It is a difficult label to live with because it comes with so
many misconceptions and misunderstanding by so many people.

Knowledge is going to be power for her. At 12 she is capable of
understanding what this means for her. Become knowledgeable yourself,
and then pass that to her. 12 is hard for everyone, finding out you
have a "label" at 12 just makes it harder. Try to avoid saying "Halley
is epileptic" because that defines her, where "Halley has epilepsy"
doesn't assign a label. Seems like splitting hairs, but for most of us
the distinction means we aren't our disease.

Her meds are going to be a fight because they are a constant reminder of
her diagnosis. Tell her the consequences, be honest with her. At 12
she is capable of understanding what may happen without them. If they
don't work, if she is still having seizures, remind her that it takes
time. Most of us had to try a few meds to get one that worked for us.
Side effects are common on anti-epileptic meds, so keep track of changes
in her. Everything from depression to clumsiness, concentration issues
to losing words mid sentence. The more you know about how they are
effecting her when you return to the Dr. the better.

When you go back, be prepared with questions. Do your research.

This group is wonderful. You will find a great resource in the people
here, all of whom have experienced this in different ways. Never be
afraid to ask questions.

Let us know how things go.

Kelly

On 8/11/2012 10:07 AM, Mummy wrote:
>
> My name is Sophia, am a single mum of 3 lovely kids, my (middle child)
> Halley 12, was just diagnosed with epilepsy, the Doctor put her on
> Zarotin, going back to the doctors next week for medication
> adjustment. Halley is in that depressed stage at the moment, why me?,
> and my life is over, and have to keep on top of her to take the
> medication.
>

[Non-text portions of this message have been removed]

__._,_.___

Reply to sender | Reply to group | Reply via web post | Start a New Topic

Messages in this topic (3)

Recent Activity:

• New Members 3

Visit Your Group

Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

.

__,_._,___