I'll be praying for ya! Hang in there it will be over soon.
Trish (jiminycricketblue)
--- On Tue, 5/26/09, Kelly Porter <kellyporter@
From: Kelly Porter <kellyporter@
Subject: [epilepsy] Finally having my SSDI hearing
To: epilepsy@yahoogroup
Date: Tuesday, May 26, 2009, 4:22 PM
After 3 years 3 brain surgeries and many meds I am having my SSDI
hearing on June 16th!! I will travel to Reno by on the 15the have my
hearing the 16th and come home on the 17th. My lawyer and I will be
having a lengthy discussion before that, but I am almost dreading the
emotional toil this is going to have on me. All 5 of my post op
seizures have been stress induced.
The thought of trying to tell someone who doesn't know me, who has to
determine my future, why I cant work though I "look" perfectly normal
freaks me out. The reality is it really is "all in my head" and all in
those pill bottles I open morning and night!! Well partially no longer
in my head since part of what has caused this is that they took part of
it out! A head that my husband and I have come to realize will forever
be different emotionally and mentally--but that I can maybe learn to
deal with if I can control my environment and the number of "boxes" and
people I surround myself with. How can someone who has never
experienced that decide my future for me in one meeting? Everyone I
know has realized that I cannot deal with anything outside the "norm"
anything outside my "schedule" anything that happens that "rattles me".
The more that I have going on in my life the more likely that is to
happen. The more people I have to deal with the more likely that is to
happen. The more it happens the worse my side effects-and the worse I
react-the worse the cycle becomes.
Yet on the 16th I will go to this meeting with my lawyer and we will
present all the information we have and then I will wait to see what
this person determines about my life.
Kelly
[Non-text portions of this message have been removed]
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