Wednesday, May 27, 2009

[epilepsy] Re: Finally having my SSDI hearing



Hi Kelly,
I feel super positive for you with this touffie part of disability.
It will be great having this over and done real soon too. I will
note the 16th as a special day so I can keep you with me in prayer.
Sincerely, Doris

--- In epilepsy@yahoogroups.com, Kelly Porter <kellyporter@...> wrote:
>
> After 3 years 3 brain surgeries and many meds I am having my SSDI
> hearing on June 16th!! I will travel to Reno by on the 15the have my
> hearing the 16th and come home on the 17th. My lawyer and I will be
> having a lengthy discussion before that, but I am almost dreading the
> emotional toil this is going to have on me. All 5 of my post op
> seizures have been stress induced.
>
> The thought of trying to tell someone who doesn't know me, who has to
> determine my future, why I cant work though I "look" perfectly normal
> freaks me out. The reality is it really is "all in my head" and all in
> those pill bottles I open morning and night!! Well partially no longer
> in my head since part of what has caused this is that they took part of
> it out! A head that my husband and I have come to realize will forever
> be different emotionally and mentally--but that I can maybe learn to
> deal with if I can control my environment and the number of "boxes" and
> people I surround myself with. How can someone who has never
> experienced that decide my future for me in one meeting? Everyone I
> know has realized that I cannot deal with anything outside the "norm"
> anything outside my "schedule" anything that happens that "rattles me".
> The more that I have going on in my life the more likely that is to
> happen. The more people I have to deal with the more likely that is to
> happen. The more it happens the worse my side effects-and the worse I
> react-the worse the cycle becomes.
>
> Yet on the 16th I will go to this meeting with my lawyer and we will
> present all the information we have and then I will wait to see what
> this person determines about my life.
>
> Kelly
>

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