i mentioned it to them cause i tried to get ahold of her neuro yesterday about the puken but the on call neuro said he didnt know an to call and talk to her neuro today so thats what i was doing but the seizures got worse so that added to the call. its so easy to panic but i know i got to be strong. and i know to lay her down on her side when she goes full body.
i understand shes just starting the medicine b ut it just seems like she should be improving not getting worse on it. or at the least staying the same.
thanks for the responces .-sarah
--- In epilepsy@yahoogroup
>
> Good goin Sarah!! No need to panic....I would make sure you tell them about the last paragraph there about
> her ... should she be vomiting specially immediately after taking the med...it is not getting in her at all.
> Keep track of. I know when I get constipated this can follow with a breakthrough seizure (small or large). to
> get her regulated try starting the day with a small glass of water. Just make sure you keep note of all these
> happenings so can tell dr. when you see him ok. This is what the Dr. most likely means when he says 'monitor'.
> She could be allergic to the meds too, or it could just be a normal side effect. To check out any new meds. go
> to www.medlineplus.
> the whole run down on what happens.
> Julie
>
> Julie Hope
> epilepsyhealth@
> http://www.2betrhea
> ----- Original Message -----
> From: "zolanmelsmom" <mom2zola414@
> To: <epilepsy@yahoogroup
> Sent: Wednesday, May 27, 2009 10:02 PM
> Subject: [epilepsy] Re: can anyone help?
>
>
>
> my name is sarah. and the neuro and her pedi finally called me back after a few hours said to start the
> morning dosage and continue the night dose. and to monitor her closely if shes still doing this in 2 days to
> take her to the e.r. and they will see her .shes having a whole new type of seizure now. hopefully this
> helps. i just feel so helpless and lost. i dont know what to do. i have never even met anyone with epilepsy!
> i dont know what to do.
>
> shes also being referred out to a G.I. specialist to see what is going on with her. one days hes puken the
> next shes not. one day shes constipated the next day she goes to the bathroom ALOT ..
>
>
> --- In epilepsy@yahoogroup
> >
> > Hi Mom
> > Forgot your real name already ..dah..did you get her meds from a local druggist? You can call him and tell
> > him/her or I know my hubby has had to call our local doctor at his home after hours, but then we live in a
> > small town so she doesn't mind answering questions over the phone.
> > If your daughter has only been on the meds for a short time, it does take a period of time for the body to
> > get
> > accustomed to the drug. I would keep trying to get ahold of someone should it not ease off. Keep note of
> > everything that happens and again after she has been given the second dose in the morning.
> > Take care
> > Julie
> >
> > Julie Hope
> > epilepsyhealth@
> > http://www.2betrhea
> > ----- Original Message -----
> > From: "zolanmelsmom" <mom2zola414@
> > To: <epilepsy@yahoogroup
> > Sent: Wednesday, May 27, 2009 1:37 PM
> > Subject: [epilepsy] can anyone help?
> >
> >
> > 9i dont know what to do. i cant get ahold of melodys neuro or her pediatricain to ask them.
> > shes been on the trileptal since last thursday she gets one dose at bed time each day (8 pm) and i make
> > sure
> > its on time and i dont miss the dosages
> >
> > she seems to be having worse episodes of her seizures. shes starting to do the headnod with a slight body
> > twitch/jerk. its really freaky to me. it was just a head nod. shes doing this when shes awake and sleeping
> > i
> > lay her down on the floor and grab the camera to record but it stops.
> >
> > tomorrow she gets her trileptal twice a day when she wakes up and at bed time.
> >
> > what am i supose to do?
> >
> >
> >
> > ------------
> >
> > Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply
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> >
> > Yahoo! Groups Links
> >
>
>
>
>
> ------------
>
> Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply
> to them. This is especially important if you are on digest. This not only helps out the list owner but, it
> makes messages much easier to read when they arrive in our inboxes.
>
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