my name is sarah. and the neuro and her pedi finally called me back after a few hours said to start the morning dosage and continue the night dose. and to monitor her closely if shes still doing this in 2 days to take her to the e.r. and they will see her .shes having a whole new type of seizure now. hopefully this helps. i just feel so helpless and lost. i dont know what to do. i have never even met anyone with epilepsy! i dont know what to do.
shes also being referred out to a G.I. specialist to see what is going on with her. one days hes puken the next shes not. one day shes constipated the next day she goes to the bathroom ALOT ..
--- In epilepsy@yahoogroup
>
> Hi Mom
> Forgot your real name already ..dah..did you get her meds from a local druggist? You can call him and tell
> him/her or I know my hubby has had to call our local doctor at his home after hours, but then we live in a
> small town so she doesn't mind answering questions over the phone.
> If your daughter has only been on the meds for a short time, it does take a period of time for the body to get
> accustomed to the drug. I would keep trying to get ahold of someone should it not ease off. Keep note of
> everything that happens and again after she has been given the second dose in the morning.
> Take care
> Julie
>
> Julie Hope
> epilepsyhealth@
> http://www.2betrhea
> ----- Original Message -----
> From: "zolanmelsmom" <mom2zola414@
> To: <epilepsy@yahoogroup
> Sent: Wednesday, May 27, 2009 1:37 PM
> Subject: [epilepsy] can anyone help?
>
>
> 9i dont know what to do. i cant get ahold of melodys neuro or her pediatricain to ask them.
> shes been on the trileptal since last thursday she gets one dose at bed time each day (8 pm) and i make sure
> its on time and i dont miss the dosages
>
> she seems to be having worse episodes of her seizures. shes starting to do the headnod with a slight body
> twitch/jerk. its really freaky to me. it was just a head nod. shes doing this when shes awake and sleeping i
> lay her down on the floor and grab the camera to record but it stops.
>
> tomorrow she gets her trileptal twice a day when she wakes up and at bed time.
>
> what am i supose to do?
>
>
>
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