Gaelic,
Welcome to our group. I know why you joined. You need us,
and we are here for you.
Have you tried getting disability? It usually takes 3 tries.
A lawyer would help. I'd like to know how you are to work if
you can't do the many things you mentioned. Around here
there are no jobs now. Is that the way it is around there?
I can see why you would be discouraged. When did you have
your last EEG or MRI? Since your Dr. doesn't know what to do --
Have you considered going to another Dr.?
What are you studying in college? How do you get there?
Millie
`
Hi all. I'm new to the group and just wanted to say hi. I'm not
> entirely sure why I joined as I generally have a hard time talking to
> people about my seizures. I can explain what epilepsy is, and how to
> react when I have them. I'm used to that from having to do it at
> school. (I'm back in college after too many years out.) I guess I
> just wanted to feel like I wasn't alone. There's so many things you
> CAN'T say to the people around you. How do I tell my husband how
> sorry I am for how this effects HIS life? See, when he met me, I had
> partial seizures, and occasional tonic seizures. Things are getting
> worse though, and my neurologist doesn't know why. My seizures are
> from a combination of a head injury and a minor birth defect. She
> says I have motor cortex tissue in the wrong place, whatever that's
> supposed to mean. On medication I get only about 3-5 seizures a week.
> I know that's a lot, but for ME, it's not. OF course, when I apply
> for disability they say there's a job out there for me somewhere. I'd
> like to know where since every job I have gotten in the last five
> years has found a reason to get rid of me. In the law firm it was
> when I had a seizure in front of a client. Two days later I was fired
> for being three minutes late. At the gas station it was "leaving the
> till unattended" during a seizure. At the factory, "creating an
> unsafe work environment" by having a seizure that caused me to fall
> into the lane the forklift drivers use.
>
> I don't really know why I'm here. My neurologist tells me it's not
> going to get any better. We've tried dozens of medications. Surgery
> is not an option. I wonder sometimes if she could find an answer if I
> had medical insurance. I'm going to try and apply for medicaid and
> see if they will take me even though I can't have children. I guess I
> just felt alone. The only friend I had who really understood what it
> felt like has had to move away because her husband lost his job and
> the only one he could find was in another state. I just feel like my
> life is falling apart and I don't know what to do.
>
> I can't go out alone. I can't go upstairs to see my friends. My
> doctor says no stairs and the last time I ignored that rule I had a
> seizure at the top and broke my knee on the way down. I can't cook
> except in the microwave or toaster oven because I set a fire once.
> The list of things they say I "can't" do gets longer and longer until
> I start to wonder what's left. I've been getting pretty depressed
> lately. I guess that's rather obvious. I want a life. A real one.
> Not this.
>
>
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