Kelly,
That must be terrible. I can't imagine having pain all the time. The
only time I ever had pain was when I gave birth to my 3 children
and when I had migraines every two weeks when I was married.
How are you coping with this heat? Or isn't it hot where you are?
I live in IN . Right now it is 11 pm and it is still 86. It usually cools
off at night but we are really having a heat wave for about 10 days.
It was 95 degrees today and they say will be higher tomorrow.
On TV I saw them put a thermometer inside a car and it was 131
degrees.
Millie
----- Original Message -----
From: Kelly Porter
To: epilepsy@yahoogroups.com
Sent: Wednesday, July 20, 2011 6:09 PM
Subject: Re: [epilepsy] reducing meds update
Millie,
Yes I always have pain, and it is two things. After my RTL I was having
horrid stabbing pains on the left side of my face, and my neurologist
determined it was being caused by damage to my 5th cranial nerve, known
as trigeminal neuraligia. That is when I went on Lyrica. I also have
all over pain, diffuse, that is caused by nerve damage from the chiari
malformation I had decompressed in 2006. The malformation causes
pressure on the nerves leading out of the brain stem into the spinal
column, so the damage is not reversible, but thankfully I only have
pain, because some people go undiagnosed so long they end up in wheelchairs.
I won't go on strong painkillers/narcotics because i have really
horrible side effects to them. Even after each of my brain surgeries I
only stayed on them a really short time. My neurosurgeon who did my RTL
was really shocked I was off narcotics at 6 weeks out.
Kelly
[Non-text portions of this message have been removed]
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