Sunday, May 31, 2009

RE[epilepsy] Re: By chance?



I have a 4 Yr old was diagnosed at 18 months.

-----Original Message-----
From: pmvdl@att.net <pmvdl@att.net>
Sent: Sunday, May 31, 2009 9:44 PM
To: epilepsy@yahoogroups.com
Subject: [epilepsy] Re: By chance?

--- In epilepsy@yahoogroups.com, "elizabethkaron" <elizabethkaron@...> wrote:
>
> By chance how many people on here that their own kids have epilepsy? what are their ages?
>
>
>
> My daughter is 6 and half years old and has had epilepsy since she was 2 weeks old.
>

My son has epilepsy since he was almost 3. He is now 21, and still has seizures, almost every day. On 4 different meds, 2 rescue meds, and has vagus nerve stimulator.

Molly

Messages in this topic (6)

[The entire original message is not included]

[Non-text portions of this message have been removed]

__._,_.___
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

Recent Activity
Visit Your Group
Dog Groups

on Yahoo! Groups

discuss everything

related to dogs.

Yahoo! Groups

Mom Power

Discover doing more

for your family

Everyday Wellness

on Yahoo! Groups

Find groups that will

help you stay fit.

.

__,_._,___

Re: [epilepsy] Re: vision




i just want to say to stephen pales that i was not trying to upset you or have what was said sound derogatory.i was simply trying to be humorous as i often see that you do because i also feel that humor is a good form of medicine. i believe this because being able to laugh is to my knowledge a stress reducer.with stress being a trigger for seizures i want to try to make others laughso keep smiling.
--- On Sun, 5/31/09, no_seizures_since_surgery <stephenpales@yahoo.com> wrote:

From: no_seizures_since_surgery <stephenpales@yahoo.com>
Subject: [epilepsy] Re: vision
To: epilepsy@yahoogroups.com
Date: Sunday, May 31, 2009, 1:29 PM

--- In epilepsy@yahoogroup s.com, scott callahan <shotwho24@. ..> wrote:
>
>
Oh come on now Scott! What do you think this group is for? People who have good memories (NOT)! I can't remember what I just said let alone remember what words I used as I kept substituting words while talking? And at the same time people give me this look not having a clue what I was trying to say! Hey, if we don't find a way to laugh about ourselves, how can we enjoy life! People who know I have epilepsy can't even catch most of the one liners I say so often about myself! I look at it this way, seize every moment you can in life since sometime we can't seize that moment when in a seizure when our minds take a break! I used to almost always have those kind of seizures. I had complex partials 1-7 each month on average. And here I am now with a shriveled up left temporal lobe, with a piece of my amydala taken out of me! You think I'm going to complain? How can I since they take a piece of my brain out and I'm now seizure free! I guess thats my way of
losing weight! Except that now I'm lighter on the left side of my brain so my head tilts to the right (big smile)! Could I say I feel light headed on my left side of my head since that was where surgery was? Oh gosh, don't get me on a roll here (giant laugh)! Take care, keep a smile on your face!

Steve

> stephen now you see here young man!!!...oops, i forgot what i was going to say--darn my memory,that' s epilepsy for ya. ok just kiddin,addin some humorhave a great day everyone. 
> --- On Sun, 5/31/09, no_seizures_ since_surgery <stephenpales@ ...> wrote:
>
>
> From: no_seizures_ since_surgery <stephenpales@ ...>
> Subject: [epilepsy] Re: vision
> To: epilepsy@yahoogroup s.com
> Date: Sunday, May 31, 2009, 12:23 PM
>
>
>
>
>
>
>
>
> Hi Nancy,
>
> How do we know you are the oldest, haven't seen any numbers yet of your age (smile)! I'm still a kid I know, since I'm just 51 1/2 (smile) years young. Take care, keep a smile on your face!
>
> Steve
>
> --- In epilepsy@yahoogroup s.com, Nancy Livesay <nlivesay1801@ ...> wrote:
> >
> > YOU GUYS A NOT OLD YET. aS i AM THE OLDEST IN THIS CROWD hA! hA!
> >
> >
> >
> >
> > ____________ _________ _________ __
> > From: moblondielpn <moblondielpn@ ...>
> > To: epilepsy@yahoogroup s.com
> > Sent: Sunday, May 31, 2009 9:27:13 AM
> > Subject: [epilepsy] vision
> >
> >
> >
> >
> >
> > I am 44yrs now. Guess that could just be it, but I am wearing tri
> > now. I had noticed a difference again in only about three months after got these. Insurance covers one pair a year.
> > Thanks for all the input.Steve, you could be right, I guess I will be 99 and saying "I'm getting older" I say that all the time a new wrinkle, change in body(won't even go there) ha.
> > Thanks to all for your replies.
> > Marie
> >
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

[Non-text portions of this message have been removed]

__._,_.___
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

Recent Activity
Visit Your Group
Give Back

Yahoo! for Good

Get inspired

by a good cause.

Y! Toolbar

Get it Free!

easy 1-click access

to your groups.

Yahoo! Groups

Start a group

in 3 easy steps.

Connect with others.

.

__,_._,___

Re: [epilepsy] Re: Lamictal -- Brand Name vs. Generic (Rx Rate Increases) for EP



Molly,
 
First start make sure your kid is safe and make sure you report about the condition that your kid is having problem /swing move and tireness. The reason I say this is because the meds could effect your son future.
 
Rodolfo

--- On Mon, 6/1/09, pmvdl@att.net <pmvdl@att.net> wrote:

From: pmvdl@att.net <pmvdl@att.net>
Subject: [epilepsy] Re: Lamictal -- Brand Name vs. Generic (Rx Rate Increases) for EP
To: epilepsy@yahoogroups.com
Date: Monday, June 1, 2009, 2:50 AM

---

My son is on the generic Lamictal.The insurance co made us switch about 2 months ago. it is going ok. We had alot of issues with the generic Keppra, so the dr did the paperwork so we could be on name brand. We are having issues with Phenobarbital. We have been on that one since mid April, but we are seeing all kinds of mood swings, tiredness etc.

Molly

In epilepsy@yahoogroup s.com, Jeff Stewart <jeffro7946@ ...> wrote:

>
> Since we are on the topic of lamictal the nero wants to start my daughter on it i am a little nervous cause of the possible side effect
>
> Keena
>
>
>
>
> ____________ _________ _________ __
> From: uniquepnk tds.net <Uniquepnk@. ..>
> To: epilepsy@yahoogroup s.com
> Sent: Saturday, May 30, 2009 12:15:31 PM
> Subject: Re: [epilepsy] Lamictal -- Brand Name vs. Generic (Rx Rate Increases) for EP
>
>
>
>
>
> Edna,
>
> Welcome to the group. I was allerigic to Lamictal, so I am taking different
> kinds of medicine, but I have had problems with different kinds of medicine
> I have taken. I got switched to the generic Keppra a few months ago and had
> to be switched right back a month or somewhere in that time period. I
> started having seizures by the next day after the swicth. Generic stuff
> might claim to be as good as the brand name stuff, but I just don't think
> they are.I know the brand medicine is more expensive, but it does seem to
> work better if you start out on it. If they give the generic to start with
> maybe would do better than to switch from the brand name to the generic. I
> hope you don't have any problems with it, if you have to switch. Take care
> and if you need anything write anytime.
>
> Tammy
> On Sat, May 30, 2009 at 12:07 AM, Edna Hopper
> <ednawallacehopper@ yahoo.com>wrote:
>
> >
> >
> >
> > I'm new to the group, and appreciate your feedback.
> >
> > After 13 years of experiencing
> > partial seizures (diagnosed by multiple neurologists as "panic
> > attacks"), I experienced a grand mal seizure 5 years ago. I was immediately
> > put on 100mg of brand-name Lamictal, and have not had any seizures since. I
> > just found out that my Rx costs for Lamical have increased 600% (from $100
> > / 90
> > days to $615) because the mail order Rx company now offers the generic for
> > Lamictal. They insist that the generic for Lamictal is exactly the same
> > formulation as the brand name, but I'm suspicious. I've read about
> > seizure-free patients unknowingly being switched from the brand name to the
> > generic, then suddenly suffering seizures. My doctor is adamant that I
> > remain on the brand name, as he, too, is concerned that the generic
> > formulation is different, and feels it's too risky to switch to the generic.
> >
> > I have petitioned for an appeal with the mail order Rx company with a
> > letter from my physician, as well as my own impassioned plea, and have
> > respectfully asked that I be allowed to continue with the brand name at the
> > same cost as before the rate hike. I am awaiting their reply.
> >
> > I'm hoping
> > someone from the group might have insight into 1.) their own experience of
> > switching from brand name Lamictal to the generic and the outcome; 2.) if
> > they've had experience / success appealing the Rx costs to their health
> > insurance company / Rx company; and 3.) if they have a contact at
> > GlaxoSmithKline. I believe some phara companies are offering their meds at
> > reduced rates to patients in need.
> >
> > I look forward to any insight you can
> > offer.
> >
> > Thanks,
> >
> > Edna
> >
> >
> >
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

[Non-text portions of this message have been removed]

__._,_.___
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

Recent Activity
Visit Your Group
Cat Zone

on Yahoo! Groups

Join a Group

all about cats.

Yahoo! Groups

Stay healthy

and discover other

people who can help.

Group Charity

GiveWell.net

Identifying the

best non-profits

.

__,_._,___

[epilepsy] Re: Lamictal -- Brand Name vs. Generic (Rx Rate Increases) for EP



---

My son is on the generic Lamictal.The insurance co made us switch about 2 months ago. it is going ok. We had alot of issues with the generic Keppra, so the dr did the paperwork so we could be on name brand. We are having issues with Phenobarbital. We have been on that one since mid April, but we are seeing all kinds of mood swings, tiredness etc.

Molly

In epilepsy@yahoogroups.com, Jeff Stewart <jeffro7946@...> wrote:

>
> Since we are on the topic of lamictal the nero wants to start my daughter on it i am a little nervous cause of the possible side effect
>
> Keena
>
>
>
>
> ________________________________
> From: uniquepnk tds.net <Uniquepnk@...>
> To: epilepsy@yahoogroups.com
> Sent: Saturday, May 30, 2009 12:15:31 PM
> Subject: Re: [epilepsy] Lamictal -- Brand Name vs. Generic (Rx Rate Increases) for EP
>
>
>
>
>
> Edna,
>
> Welcome to the group. I was allerigic to Lamictal, so I am taking different
> kinds of medicine, but I have had problems with different kinds of medicine
> I have taken. I got switched to the generic Keppra a few months ago and had
> to be switched right back a month or somewhere in that time period. I
> started having seizures by the next day after the swicth. Generic stuff
> might claim to be as good as the brand name stuff, but I just don't think
> they are.I know the brand medicine is more expensive, but it does seem to
> work better if you start out on it. If they give the generic to start with
> maybe would do better than to switch from the brand name to the generic. I
> hope you don't have any problems with it, if you have to switch. Take care
> and if you need anything write anytime.
>
> Tammy
> On Sat, May 30, 2009 at 12:07 AM, Edna Hopper
> <ednawallacehopper@ yahoo.com>wrote:
>
> >
> >
> >
> > I'm new to the group, and appreciate your feedback.
> >
> > After 13 years of experiencing
> > partial seizures (diagnosed by multiple neurologists as "panic
> > attacks"), I experienced a grand mal seizure 5 years ago. I was immediately
> > put on 100mg of brand-name Lamictal, and have not had any seizures since. I
> > just found out that my Rx costs for Lamical have increased 600% (from $100
> > / 90
> > days to $615) because the mail order Rx company now offers the generic for
> > Lamictal. They insist that the generic for Lamictal is exactly the same
> > formulation as the brand name, but I'm suspicious. I've read about
> > seizure-free patients unknowingly being switched from the brand name to the
> > generic, then suddenly suffering seizures. My doctor is adamant that I
> > remain on the brand name, as he, too, is concerned that the generic
> > formulation is different, and feels it's too risky to switch to the generic.
> >
> > I have petitioned for an appeal with the mail order Rx company with a
> > letter from my physician, as well as my own impassioned plea, and have
> > respectfully asked that I be allowed to continue with the brand name at the
> > same cost as before the rate hike. I am awaiting their reply.
> >
> > I'm hoping
> > someone from the group might have insight into 1.) their own experience of
> > switching from brand name Lamictal to the generic and the outcome; 2.) if
> > they've had experience / success appealing the Rx costs to their health
> > insurance company / Rx company; and 3.) if they have a contact at
> > GlaxoSmithKline. I believe some phara companies are offering their meds at
> > reduced rates to patients in need.
> >
> > I look forward to any insight you can
> > offer.
> >
> > Thanks,
> >
> > Edna
> >
> >
> >
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

__._,_.___
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

Recent Activity
Visit Your Group
Give Back

Yahoo! for Good

Get inspired

by a good cause.

Y! Toolbar

Get it Free!

easy 1-click access

to your groups.

Yahoo! Groups

Start a group

in 3 easy steps.

Connect with others.

.

__,_._,___

[epilepsy] Re: Lamictal -- Brand Name vs. Generic (Rx Rate Increases) for EP



---

My son is on the generic Lamictal.The insurance co made us switch about 2 months ago. it is going ok. We had alot of issues with the generic Keppra, so the dr did the paperwork so we could be on name brand. We are having issues with Phenobarbital. We have been on that one since mid April, but we are seeing all kinds of mood swings, tiredness etc.

Molly

In epilepsy@yahoogroups.com, Jeff Stewart <jeffro7946@...> wrote:

>
> Since we are on the topic of lamictal the nero wants to start my daughter on it i am a little nervous cause of the possible side effect
>
> Keena
>
>
>
>
> ________________________________
> From: uniquepnk tds.net <Uniquepnk@...>
> To: epilepsy@yahoogroups.com
> Sent: Saturday, May 30, 2009 12:15:31 PM
> Subject: Re: [epilepsy] Lamictal -- Brand Name vs. Generic (Rx Rate Increases) for EP
>
>
>
>
>
> Edna,
>
> Welcome to the group. I was allerigic to Lamictal, so I am taking different
> kinds of medicine, but I have had problems with different kinds of medicine
> I have taken. I got switched to the generic Keppra a few months ago and had
> to be switched right back a month or somewhere in that time period. I
> started having seizures by the next day after the swicth. Generic stuff
> might claim to be as good as the brand name stuff, but I just don't think
> they are.I know the brand medicine is more expensive, but it does seem to
> work better if you start out on it. If they give the generic to start with
> maybe would do better than to switch from the brand name to the generic. I
> hope you don't have any problems with it, if you have to switch. Take care
> and if you need anything write anytime.
>
> Tammy
> On Sat, May 30, 2009 at 12:07 AM, Edna Hopper
> <ednawallacehopper@ yahoo.com>wrote:
>
> >
> >
> >
> > I'm new to the group, and appreciate your feedback.
> >
> > After 13 years of experiencing
> > partial seizures (diagnosed by multiple neurologists as "panic
> > attacks"), I experienced a grand mal seizure 5 years ago. I was immediately
> > put on 100mg of brand-name Lamictal, and have not had any seizures since. I
> > just found out that my Rx costs for Lamical have increased 600% (from $100
> > / 90
> > days to $615) because the mail order Rx company now offers the generic for
> > Lamictal. They insist that the generic for Lamictal is exactly the same
> > formulation as the brand name, but I'm suspicious. I've read about
> > seizure-free patients unknowingly being switched from the brand name to the
> > generic, then suddenly suffering seizures. My doctor is adamant that I
> > remain on the brand name, as he, too, is concerned that the generic
> > formulation is different, and feels it's too risky to switch to the generic.
> >
> > I have petitioned for an appeal with the mail order Rx company with a
> > letter from my physician, as well as my own impassioned plea, and have
> > respectfully asked that I be allowed to continue with the brand name at the
> > same cost as before the rate hike. I am awaiting their reply.
> >
> > I'm hoping
> > someone from the group might have insight into 1.) their own experience of
> > switching from brand name Lamictal to the generic and the outcome; 2.) if
> > they've had experience / success appealing the Rx costs to their health
> > insurance company / Rx company; and 3.) if they have a contact at
> > GlaxoSmithKline. I believe some phara companies are offering their meds at
> > reduced rates to patients in need.
> >
> > I look forward to any insight you can
> > offer.
> >
> > Thanks,
> >
> > Edna
> >
> >
> >
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

__._,_.___
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

Recent Activity
Visit Your Group
Give Back

Yahoo! for Good

Get inspired

by a good cause.

Y! Toolbar

Get it Free!

easy 1-click access

to your groups.

Yahoo! Groups

Start a group

in 3 easy steps.

Connect with others.

.

__,_._,___

[epilepsy] Re: By chance?



--- In epilepsy@yahoogroups.com, "elizabethkaron" <elizabethkaron@...> wrote:
>
> By chance how many people on here that their own kids have epilepsy? what are their ages?
>
>
>
> My daughter is 6 and half years old and has had epilepsy since she was 2 weeks old.
>

My son has epilepsy since he was almost 3. He is now 21, and still has seizures, almost every day. On 4 different meds, 2 rescue meds, and has vagus nerve stimulator.

Molly

__._,_.___
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

Recent Activity
Visit Your Group
Group Charity

City Year

Young people who

change the world

Yahoo! Groups

Everyday Wellness Zone

Check out featured

healthy living groups.

Yahoo! Groups

Auto Enthusiast Zone

Auto Enthusiast Zone

Discover auto groups

.

__,_._,___

Re: [epilepsy] Lamictal -- Brand Name vs. Generic (Rx Rate Increases) for EP



Keena,

I get really scared about trying new medications too, but hopefully your
daughter will get better results out of this medicine. I hope and pray
everything will be ok. Both of you take care.

Tammy

On Sun, May 31, 2009 at 6:53 PM, Jeff Stewart <jeffro7946@yahoo.com> wrote:

>
>
> Hi Tammy
>
> Yes I am going to let her try it I will just be a little nervous about it
> as you said there is side effects on all meds i will just keep an eye out
> for them
>
> ________________________________
> From: uniquepnk tds.net <Uniquepnk@tds.net <Uniquepnk%40tds.net>>
> To: epilepsy@yahoogroups.com <epilepsy%40yahoogroups.com>
> Sent: Sunday, May 31, 2009 1:31:27 PM
> Subject: Re: [epilepsy] Lamictal -- Brand Name vs. Generic (Rx Rate
> Increases) for EP
>
> Keena,
>
> That is something you have to consider with any medicine you try. Lamictal
> seemed to be a good medicine while I was on it. I was on it for a while
> before I got a rash from it, but I was seizure free during that time.The
> neurologist said it was because of the other medicine I was taking with it,
> but it wouldn't work without it. I got switched to something else. It might
> work well for your daughter. I hope it does if you decide to let your
> daughter try it. Take care.
>
> Tammy
>
> On Sat, May 30, 2009 at 11:11 PM, Jeff Stewart <jeffro7946@yahoo. com>
> wrote:
>
> >
> >
> > Since we are on the topic of lamictal the nero wants to start my daughter
> > on it i am a little nervous cause of the possible side effect
> >
> > Keena
> >
> > ____________ _________ _________ __
> > From: uniquepnk tds.net <Uniquepnk@tds. net <Uniquepnk%40tds. net>>
> > To: epilepsy@yahoogroup s.com <epilepsy%40yahoogr oups.com>
> > Sent: Saturday, May 30, 2009 12:15:31 PM
> > Subject: Re: [epilepsy] Lamictal -- Brand Name vs. Generic (Rx Rate
> > Increases) for EP
> >
> > Edna,
> >
> > Welcome to the group. I was allerigic to Lamictal, so I am taking
> different
> > kinds of medicine, but I have had problems with different kinds of
> medicine
> > I have taken. I got switched to the generic Keppra a few months ago and
> had
> > to be switched right back a month or somewhere in that time period. I
> > started having seizures by the next day after the swicth. Generic stuff
> > might claim to be as good as the brand name stuff, but I just don't think
> > they are.I know the brand medicine is more expensive, but it does seem to
> > work better if you start out on it. If they give the generic to start
> with
> > maybe would do better than to switch from the brand name to the generic.
> I
> > hope you don't have any problems with it, if you have to switch. Take
> care
> > and if you need anything write anytime.
> >
> > Tammy
> > On Sat, May 30, 2009 at 12:07 AM, Edna Hopper
> > <ednawallacehopper@ yahoo.com>wrote:
> >
> > >
> > >
> > >
> > > I'm new to the group, and appreciate your feedback.
> > >
> > > After 13 years of experiencing
> > > partial seizures (diagnosed by multiple neurologists as "panic
> > > attacks"), I experienced a grand mal seizure 5 years ago. I was
> > immediately
> > > put on 100mg of brand-name Lamictal, and have not had any seizures
> since.
> > I
> > > just found out that my Rx costs for Lamical have increased 600% (from
> > $100
> > > / 90
> > > days to $615) because the mail order Rx company now offers the generic
> > for
> > > Lamictal. They insist that the generic for Lamictal is exactly the same
> > > formulation as the brand name, but I'm suspicious. I've read about
> > > seizure-free patients unknowingly being switched from the brand name to
> > the
> > > generic, then suddenly suffering seizures. My doctor is adamant that I
> > > remain on the brand name, as he, too, is concerned that the generic
> > > formulation is different, and feels it's too risky to switch to the
> > generic.
> > >
> > > I have petitioned for an appeal with the mail order Rx company with a
> > > letter from my physician, as well as my own impassioned plea, and have
> > > respectfully asked that I be allowed to continue with the brand name at
> > the
> > > same cost as before the rate hike. I am awaiting their reply.
> > >
> > > I'm hoping
> > > someone from the group might have insight into 1.) their own experience
> > of
> > > switching from brand name Lamictal to the generic and the outcome; 2.)
> if
> > > they've had experience / success appealing the Rx costs to their health
> > > insurance company / Rx company; and 3.) if they have a contact at
> > > GlaxoSmithKline. I believe some phara companies are offering their meds
> > at
> > > reduced rates to patients in need.
> > >
> > > I look forward to any insight you can
> > > offer.
> > >
> > > Thanks,
> > >
> > > Edna
> > >
> > >
> > >
> >
> > [Non-text portions of this message have been removed]
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
>
>

[Non-text portions of this message have been removed]

__._,_.___
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

Recent Activity
Visit Your Group
Yahoo! Groups

Mom Power

Just for moms

Join the discussion

Y! Groups blog

The place to go

to stay informed

on Groups news!

Yahoo! Groups

Auto Enthusiast Zone

Passionate about cars?

Check out the Auto Enthusiast Zone.

.

__,_._,___