I am Sam.
My lover, Maguy, and I both have uncontrolled seizures. Her for the whole 30ys of her life even after surgery and with VNS. Me for the last 29ys. We met in Boulder Co. and now live with and watch after each other. We both love the outdoors and Boulder County and Denver Colorado have incredible bus transportation. Since we both love the outdoors, we walk, bike and bus everywhere everyday. We could be a story. I actually upgraded my Romantic Comedy Screenplay to where the eventual lovers discover each other to be epileptic. This is not the cause or reason but just a wonderful coincidence to their relationship. Now let's see if the industry thinks the audience will like the story or if I need to return the lovers to being perfectly healthy.
On Friday, May 15, 2015 2:56 AM, "epilepsy@yahoogroups.com" <epilepsy@yahoogroups.com> wrote:
2 Messages
Digest #6343
Messages
Thu May 14, 2015 12:52 pm (PDT) . Posted by:
violingoddesss
Robert,
I live in California, and we have the same rule as you do in Texas. No seizures for 6 months. And I have had wonderful success with my medication. Unfortunately, I have more than one type of Epilepsy. I started out with Petite-Mal Seizures, diagnosed at 14, I averaged a 5 second seizure perhaps 12-20 times per day. When I was 16, I had my first Abnormal Petite-Mal Seizure, but I continued to have the regular Petite-Mal Seizures as well. As the years went by, I would have a combination of Petite-Mal and Abnormal Petite-Mal Seizures. But it wasn't until I had my first Grand-Mal Seizure (in my early 30's) that I really buckled down on taking my medication regularly, and keeping a seizure journal. At this point (age 37), that I can go more than 6 months without a Grand-Mal Seizure. In fact I'm coming up on one year with a Grand-Mal soon! But I still can't seem to get out of the "3-6 weeks range" with my Petite-Mal and Abnormal Petite-Mal Seizures. Hence my problem.
I hope that clarifies THAT part of the puzzle.
Sincerely,
Violin Goddess
PS, Just for those of you playing the home game, The medication I take is Depakote. It has served me well over the years. It's been a slow process, but my seizure rate has gone down consistently over time. Part of me wonders if I just have to wait longer for it to overcome that 6 month point.
I live in California, and we have the same rule as you do in Texas. No seizures for 6 months. And I have had wonderful success with my medication. Unfortunately, I have more than one type of Epilepsy. I started out with Petite-Mal Seizures, diagnosed at 14, I averaged a 5 second seizure perhaps 12-20 times per day. When I was 16, I had my first Abnormal Petite-Mal Seizure, but I continued to have the regular Petite-Mal Seizures as well. As the years went by, I would have a combination of Petite-Mal and Abnormal Petite-Mal Seizures. But it wasn't until I had my first Grand-Mal Seizure (in my early 30's) that I really buckled down on taking my medication regularly, and keeping a seizure journal. At this point (age 37), that I can go more than 6 months without a Grand-Mal Seizure. In fact I'm coming up on one year with a Grand-Mal soon! But I still can't seem to get out of the "3-6 weeks range" with my Petite-Mal and Abnormal Petite-Mal Seizures. Hence my problem.
I hope that clarifies THAT part of the puzzle.
Sincerely,
Violin Goddess
PS, Just for those of you playing the home game, The medication I take is Depakote. It has served me well over the years. It's been a slow process, but my seizure rate has gone down consistently over time. Part of me wonders if I just have to wait longer for it to overcome that 6 month point.
Thu May 14, 2015 1:53 pm (PDT) . Posted by:
"Nelson F. Vega"
Hi I'm Nelson,
one thing" how is or you're concentration: thoughts, throu these periods?
does the medication effect: you at all; with slight memory issues.
I'm a Keppra-user, and it really bangs-me out: like 2 or 3 times a day.
but..but.. also had Doctors ask: if I often travel, like over-seas.
no, no I replied; thou in the clinic I visit - their are some clients who have had less: symptoms after, traveling - an for long-times seizure free.
smiles.
Nelson
-----Original Message-----
From: violingoddesss@yahoo.com [epilepsy] - Email Address: epilepsy@yahoogroups.com
Sent On: 5/14/2015 15:52
Sent To: epilepsy@yahoogroups.com - Email Address: epilepsy@yahoogroups.com
subject: RE: [epilepsy] How to get around town without a drivers license!!??
Robert,
I live in California, and we have the same rule as you do in Texas. No seizures for 6 months. And I have had wonderful success with my medication. Unfortunately, I have more than one type of Epilepsy. I started out with Petite-Mal Seizures, diagnosed at 14, I averaged a 5 second seizure perhaps 12-20 times per day. When I was 16, I had my first Abnormal Petite-Mal Seizure, but I continued to have the regular Petite-Mal Seizures as well. As the years went by, I would have a combination of Petite-Mal and Abnormal Petite-Mal Seizures. But it wasn't until I had my first Grand-Mal Seizure (in my early 30's) that I really buckled down on taking my medication regularly, and keeping a seizure journal. At this point (age 37), that I can go more than 6 months without a Grand-Mal Seizure. In fact I'm coming up on one year with a Grand-Mal soon! But I still can't seem to get out of the "3-6 weeks range" with my Petite-Mal and Abnormal Petite-Mal Seizures. Hence my problem.
I hope that clarifies THAT part of the puzzle.
Sincerely,
Violin Goddess
PS, Just for those of you playing the home game, The medication I take is Depakote. It has served me well over the years. It's been a slow process, but my seizure rate has gone down consistently over time. Part of me wonders if I just have to wait longer for it to overcome that 6 month point.
one thing" how is or you're concentration: thoughts, throu these periods?
does the medication effect: you at all; with slight memory issues.
I'm a Keppra-user, and it really bangs-me out: like 2 or 3 times a day.
but..but.. also had Doctors ask: if I often travel, like over-seas.
no, no I replied; thou in the clinic I visit - their are some clients who have had less: symptoms after, traveling - an for long-times seizure free.
smiles.
Nelson
-----Original Message-----
From: violingoddesss@yahoo.com [epilepsy] - Email Address: epilepsy@yahoogroups.com
Sent On: 5/14/2015 15:52
Sent To: epilepsy@yahoogroups.com - Email Address: epilepsy@yahoogroups.com
subject: RE: [epilepsy] How to get around town without a drivers license!!??
Robert,
I live in California, and we have the same rule as you do in Texas. No seizures for 6 months. And I have had wonderful success with my medication. Unfortunately, I have more than one type of Epilepsy. I started out with Petite-Mal Seizures, diagnosed at 14, I averaged a 5 second seizure perhaps 12-20 times per day. When I was 16, I had my first Abnormal Petite-Mal Seizure, but I continued to have the regular Petite-Mal Seizures as well. As the years went by, I would have a combination of Petite-Mal and Abnormal Petite-Mal Seizures. But it wasn't until I had my first Grand-Mal Seizure (in my early 30's) that I really buckled down on taking my medication regularly, and keeping a seizure journal. At this point (age 37), that I can go more than 6 months without a Grand-Mal Seizure. In fact I'm coming up on one year with a Grand-Mal soon! But I still can't seem to get out of the "3-6 weeks range" with my Petite-Mal and Abnormal Petite-Mal Seizures. Hence my problem.
I hope that clarifies THAT part of the puzzle.
Sincerely,
Violin Goddess
PS, Just for those of you playing the home game, The medication I take is Depakote. It has served me well over the years. It's been a slow process, but my seizure rate has gone down consistently over time. Part of me wonders if I just have to wait longer for it to overcome that 6 month point.
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Posted by: Sam Inglesse <ambimind65@yahoo.com>
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Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them. This is especially important if you are on digest. This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.
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