Great info Nedra! AND there are many specific neurology fields so one should always seek a neurologist who specializes in Epilepsy / Epileptologist. The website for the Epilepsy Foundation of America is a good resource at www.epilepsy.com too. We too made this mistake early on with a neurologist who wasn’t really into Epilepsy.
Pat D
From:
Sent: Wednesday, October 14, 2015 8:31 AM
To:
Subject: Re: In Reply To: [epilepsy] need help for a family new to seizures
What you said is very true. This family needs a neurologist who is familiar with dealing with a person who has autism and seizures. That means a neurologist who will listen, understands autism, and can sort through autistic behavior and see the difference between it and seizures. Not every neurologist can do that. There are a lot of neurologist that will just brush things off as autistic behavior which are really unmanaged seizures. That can be very dangerous. I have personally seen it happen and wouldn't wish it on my worst enemy.
Nedra
---In
The answer to your; #1 question:,
If you got insurance you can easily look-up in the Doctor-book for that area in,
thou you can speak to an operator of your insurance live: and ask-them for something near where you want - in
that never fails.
next: if you don't have an insurance and going to put out the cash-$, still seek that info: even by typing in that question to your browser: and or, if you got a general phasition they can help you find-one.
but try' google+
the info is at your finger tips...
-----Original Message-----
From: 'nedra3boysi' nedra3boysi@... [epilepsy] - Email Address: epilepsy@yahoogroups.com
Sent On: 10/14/2015 09:10
Sent To: epilepsy@yahoogroups.com, dallasaspergernetwork@yahoogroups.com - Email Address: epilepsy@yahoogroups.com, dallasaspergernetwork@yahoogroups.com
subject: [epilepsy] need help for a family new to seizures
Hi,
I need help for a family new to seizures. Thirty percent of autism spectrum
people have seizures. My son Matt, is one but I just heard from another
family of a young man who joined this club this weekend. I am gathering
what information I have to give to this family who I know are overwhelmed
and reeling. But I wanted to ask here-
#1
Does anyone know a good neurologist for seizures in the
area?
#2
What is the best concise information you would give or wish you had about
seizures?
Thank you so much!
Grace and peace,
Nedra 2 of 5,
Borg Mom Resistance is Futile in finding what works for my kids with God's
help
All the accomplishments of my family are a gift from God
Posted by: "Aina & Pat DeLorenzo" <Aina-Pat@cox.net>
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