Re: In Reply To: [epilepsy] need help for a family new to seizures

 

I am so sorry you're going through this. Praying you find the right diagnosis and the proper treatment for your child. Have you joined the list for children who have seizures? You may want to look at this article. The title is misleading because it focuses on seizures deep in the brain that are not picked up by traditional EEGs. That could be the case with your child. It discusses another method of testing procedures. Our son's seizures were deep in his temporal lobe. His EEGs showed slowing but only during the seizure episodes. A QEEG did show the seizures but many neurologist said that was theoretical. That went on for several years. Then finally all of his seizures were picked up on a VEEG. So again please look at this article and research other testing methods.

 

Praying you find the best treatment for your child.

Nedra

 

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---In epilepsy@yahoogroups.com, <dawnmarierose@...> wrote :

We have had about the same experience. My husband lost his job of 18 years recently, but God has provided an even more exciting opportunity out-of-state. Our daughter has been diagnosed with seizures, but they don't know "what kind" and they don't know what to do for her. She doesn't have autism and has had seizures since she was three days old. She is now three years old and is still untreated. We are hoping and praying the doctors in our new home state will be more proactive about finding out exactly what is wrong with her. 

I agree with you wholeheartedly: God is with us, and God is good!!

Sent from my iPhone 6 Plus on the Verizon Network

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Posted by: nedra3boysi@sbcglobal.net

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