Re: [epilepsy] Re: Medication Brand name versus genertic

Its annoying when neurologist's themselves tell you that you need to upgrade your medication when the one you have been on for a decade or longer is working (maybe not as well as it could be, but better then it other wise would be).

My mate has been on Dilation for all hir adult life yet hir new neurologist that hir got when hir immigrated to be with me said that what hir was on was old and out of date and that hir needed to change/migrate to a new better option. Twit moved hir onto another one that he said would be alright and wouldn't have any negative effects and hir was to take it in combo with hir regular dilation BIG FREAKING mistake. Three months after starting this N ended up having two attacks back to back one major and a mini (major hir's not had in close to a decade, minor we've felt with on a bi monthly basis or so).

N had told the doc that hir couldn't use the genetic form of Dilation because last time hir was given it its what triggered hir last major attack while hir was driving home from work (thankfully only thing that was hurt was the car it was a write off), that attack really put a damper on hir ability to get to and from work for a while.

I didn't won't N to go on the new medication but was willing to give it a go if it was going to help things better and maybe just maybe lesson the minor attacks that N does get. I'd dun my own research and I know that switching cold turkey isn't good but that at times migrating in a new drug over time in low dosages with a gradual increase in one and lowering in the other can work (though not always). So was willing to try that side of it, IF it was going to be helpful to N.

But after this issues with hir current Neuro we're going to ask hir new doc when hir see's her (N's finally getting a actual GP after almost 3 years of only being able to see a "clinic" doc) if she can get N into one of two hospitals who have an excellent team (one is Western our leading epileptic research and training hospital and the other is Eastern which is one of our leading training hospitals - might night get in right away as the average wait is 2 to 3 years but at least start the process and keep the twit till can move to the new one).

Nyx


On 2013-05-20, at 16:51 PM, Susan Wain <susan.wain@yahoo.com> wrote:

> I was on the brand name Trileptol and was having seizurs regularly. NOW I am on the generic brand and my meds have been upped to 1,200 per day and my seizures are not as frequent so....I do better having switched to the generic.
>
> ________________________________
> From: Dora Smith <tiggernut24@yahoo.com>
> To: epilepsy@yahoogroups.com
> Sent: Sunday, May 5, 2013 8:35 AM
> Subject: Re: [epilepsy] Re: Medication Brand name versus genertic
>
>
>
>
> This is really going to depend on what the medication is and what's been this doctor's experience, which would depend partly on where people are getting their prescriptions filled.
>
> Dora
>
> From: Kelly Porter
> Sent: Saturday, May 04, 2013 8:40 PM
> To: mailto:epilepsy%40yahoogroups.com
> Subject: Re: [epilepsy] Re: Medication Brand name versus genertic
>
> Finally had to put in my 2 cents.
>
> This is what I have been told by my epileptologist, and more then one
> neurologist. The importance of brand vs. name is what you START on. If
> you start on generic your therapeutic levels will be based on the
> efficacy of the generic. FI you start on name brand the efficacy will
> based on the name brand.
>
> So it the generic is available when you first go on a drug, take it,
> since your levels will be based on that not the name brand.
>
> If you do choose to change to the generic do not do so without
> consulting your epileplogist. ONLY change if you have control, because
> if you do have a seizure you know the exact dosage of the brand to go
> back to if you choose. (this is the same as if weening off or changing
> drugs when you have control).
>
> Get your drugs from a national chain pharmacy, not a local pharmacist.
> The national chains (I use Walgreens) are likely to have long term
> contracts with suppliers, which means a change in generics is less
> likely to happen, though not gauranteed.
>
> Kelly
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
>



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