Hi Cristin,
I have taken numerous different drugs and one of them for
quite awhile was the Tegretol. The drug I started on, ages ago,
was the dilantin. My seizures started when I was 17 years old
and had a dilly of auto accident. I went to many different doctors
over the years. I recall my first doctor there was a Dr. O'Brien.
Later I was directed to a Dr. Stephen Karceski. For about 35 years
I had seizures both granmal and petimal during the day. I never
could get driving license all those years. After left temporal surgery, all day seizures stopped completely. However nocturnal
ones began and they still occur at least two nights a month. For
that reason, I am still on drugs, presently Lamictal. Seizures that
happen when I am asleep are granmal and sometimes when they repeat
the same night, my husband gives me another pill which makes it stop.
The following day is the super headache and also I sleep a lot.
We lived in New York at the time post surgery. I went to a lawyer about getting driving license since I have to be asleep to get a
seizure post surgery. I did get my license. About 6 years after
that, we moved to North Carolina and here I got a lawyer to get
license here too.
Good luck, Christin. Please let us know how it goes.
--- In epilepsy@yahoogroups.com, Cristin Filipuzzi <cristinfilipuzzi7@...> wrote:
>
> Hi Doris. My daughter is taking Trileptal. I was thinking about switching her to Tegretol, as I can not afford the Trileptal. But I will not switch her meds if the Tegretol may cause worse side effects.
> How do your seizures happen while you are sleeping? Do you mind me asking from what age did they start?
> Take Care.
> Cristin
>
>
>
>
> ________________________________
> From: DorisY <dorisellen@...>
> To: epilepsy@yahoogroups.com
> Sent: Sat, May 29, 2010 2:03:16 AM
> Subject: [epilepsy] Re: My daughter experiencing seizure like activity last night
>
> Â
> Hi Cristin,
> I can relate to seizures when asleep. This is the only type
> I get and it has been about 12 years now. I do not know what
> drug your daughter is on. I am on Lamictal and not the genetic
> kind. Hope you are satisfied with your neurologist. If you
> should have any doubt or lack of confidence with him, you
> might try another. There are many of these doctors to choose
> from. Good luck and please keep us posted how all goes. I
> will follow this up for sure. Take care,
> Doris
>
> --- In epilepsy@yahoogroups.com, "cristinfilipuzzi7" <cristinfilipuzzi7@> wrote:
> >
> > Hello. My daughters seizures started in January 2009. She has had 5 seizures. Before each one she cannot breath in any air. She makes this gasping choking sound that lasts for about 30 seconds to one minute and then the seizure kicks in and she does not remember anything else. This alwasys happens while she is sleeping. Last night shortly after falling asleep she all of the sudden lifted up her head and turned around. I asked her if she was ok. After asking her a few times she said yes. And then told me a few minutes later that she felt the same kind of feeling before she had the other seizures, but she controlled it. She was to scared to go back to sleep. This has happened once in the past as well. Does anyone know what might be going on? Thankyou. Cristin Filipuzzi
> >
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
Monday, May 31, 2010
[epilepsy] Re: My daughter experiencing seizure like activity last night
[Prince-4ever] The Original Time Band Funk Memorial Day Weekend [drfunkenberry.com]
The Original Time Band Funk Memorial Day Weekend
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Now, you know one of my funkenspies (the person who provided us the photos to use) was up in there and we asked about the new CD n if/when it will come out and we got this from Terry Lewis:
"I can assure you the CD is done and will be out this year."
Morris also mentioned it during the show. When we talked with Jimmy Jam at a Grammy event a few months ago, they were waiting for distribution.
We have been hearing bees buzzing in the industry trying to lock The Time up into an extended tour with another hot act or 2, but my funkenspy could not confirm that for you.
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Hope you enjoy. P.S. There is a pretty good chance I may add more photos later. Will keep you posted. Hope you like and a big thank you to C.B. for the exclusive pics.-Dr.FB
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NPG Member 4 Life ... [Live 4 Love]
Re: [epilepsy] Re: My daughter experiencing seizure like activity last night
He has a CPAP machine for the apnea...plus a sleeping pill if we need it (but we never use these)...plus Ativan to sedate him if his Epilepsy is really unstable. We realized real quick that 2 of his main triggers are lack of real deep sleep and dehydration !!!
________________________________
From: Julie Hope <epilepsyhealth@sasktel.net>
To: epilepsy@yahoogroups.com
Sent: Mon, May 31, 2010 3:20:15 PM
Subject: Re: [epilepsy] Re: My daughter experiencing seizure like activity last night
Hi Staci
Sleep problems of any kind can definitely be one of the main triggers. I was having problems with my legs and
feet when relaxing in the evening and found out had RLS (Restless Leg Syndrome, related to epilepsy in some
way) I would sleep for an hour or two then be awake with RLS. End up having a hot bath which would kind of
settle them down a bit just enough for me to go to sleep again. The bath would have to be a good 15min or
would be of no use. Back to bed and up again in an hour or two. This would happen all through the night. I
may, yes end up getting my 8hr sleep per night as would sleep in until noon some days, but that is not called
proper sleep. When they say proper sleep they mean without any interruptions period.
Mentioned this to my Neurologist as was getting to be a real pain in the but, and he almost jumped out of his
chair and immediately gave me something for that, adding 'no wonder you are having the odd seizure, you aren't
sleeping.' He also added that I have to have 'true' sleep if wanted to stay clean of my seizures.
Do anything you have to do to get the get the hubby sleeping properly.
Best of luck and hope all goes well.
Julie
Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: "Staci Waites" <swaites2003@yahoo.com>
To: <epilepsy@yahoogroups.com>
Sent: Monday, May 31, 2010 11:54 AM
Subject: Re: [epilepsy] Re: My daughter experiencing seizure like activity last night
Before our diagnosis of sleep apnea, I would sit there at night and count how many times my husband quit
breathing in one night. Sometimes it would be so bad that I would panic and wake him up. Other times I would
catch him have his nocturnal seizures. When I brought it up to the epileptologist, he discussed sleep apnea.
My husband epileptologist and sleep specialist feel that his sleep apnea and lack of sleep are one of his main
triggers for his E. When we went for the sleep apnea test, it showed that my husband quit breathing numerous
times throughout the night. Sometimes it would last for seconds, sometimes up to a little over a minute. Any
lack of oxygen to the brain is dangerous. The dr thinks that when my husband quits breathing, his brain goes
into shock and it triggers a seizure. Sometimes the situation is severe and wakes my husband up. The study
also showed that sometimes he just breaks his sleep cycle. He hardly makes it into REM sleep because he
arouses during his cycle do to the lack of oxygen. This causes him to feel like he is not getting enough real
rest and in turn triggers more seizures for him.
It might be something worth checking in to. They sent him to a sleep lab. Put a bunch of wires and what not on
him and measure his breathing, brain activity, and muscle activity during his sleep. It gave us alot of
details that have helped us. Its noninvasive and couldnt hurt to try.
________________________________
From: Cristin Filipuzzi <cristinfilipuzzi7@yahoo.ca>
To: epilepsy@yahoogroups.com
Sent: Mon, May 31, 2010 12:26:47 PM
Subject: Re: [epilepsy] Re: My daughter experiencing seizure like activity last night
Hi Stacey. Is the sleep apnea what actually causes your husbands seizures? I am wondering if this is
possible with my daughter. On my daughter's EEG it does show an abnormality during the second stage of sleep.
Do you think that there might be a connections with this?
When my daughter cannot breathe, she wakes up and remembers this. She cannot even get in one breath. Her
face turns blue. She is so scared of this.
________________________________
From: Staci Waites <swaites2003@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Mon, May 31, 2010 11:10:40 AM
Subject: Re: [epilepsy] Re: My daughter experiencing seizure like activity last night
Cristin,
Is it possible that her period of not breathing while sleeping could be related to sleep apnea...and then the
loss of oxygen triggers the seizure? This is what happens to my husband. His epileptologist sent him to a
sleep specialist. He was dx with severe sleep apnea and the loss of oxygen effected his E. Just an idea from
personal experience.
Staci
--- In epilepsy@yahoogroups.com, "cristinfilipuzzi7" <cristinfilipuzzi7@...> wrote:
>
> Hello. My daughters seizures started in January 2009. She has had 5 seizures. Before each one she cannot
> breath in any air. She makes this gasping choking sound that lasts for about 30 seconds to one minute and
> then the seizure kicks in and she does not remember anything else. This alwasys happens while she is
> sleeping. Last night shortly after falling asleep she all of the sudden lifted up her head and turned
> around. I asked her if she was ok. After asking her a few times she said yes. And then told me a few minutes
> later that she felt the same kind of feeling before she had the other seizures, but she controlled it. She
> was to scared to go back to sleep. This has happened once in the past as well. Does anyone know what might
> be going on? Thankyou. Cristin Filipuzzi
>
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
------------------------------------
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply
to them. This is especially important if you are on digest. This not only helps out the list owner but, it
makes messages much easier to read when they arrive in our inboxes.
Yahoo! Groups Links
[Non-text portions of this message have been removed]
Re: [epilepsy] Re: My daughter experiencing seizure like activity last night
Hi Staci
Sleep problems of any kind can definitely be one of the main triggers. I was having problems with my legs and
feet when relaxing in the evening and found out had RLS (Restless Leg Syndrome, related to epilepsy in some
way) I would sleep for an hour or two then be awake with RLS. End up having a hot bath which would kind of
settle them down a bit just enough for me to go to sleep again. The bath would have to be a good 15min or
would be of no use. Back to bed and up again in an hour or two. This would happen all through the night. I
may, yes end up getting my 8hr sleep per night as would sleep in until noon some days, but that is not called
proper sleep. When they say proper sleep they mean without any interruptions period.
Mentioned this to my Neurologist as was getting to be a real pain in the but, and he almost jumped out of his
chair and immediately gave me something for that, adding 'no wonder you are having the odd seizure, you aren't
sleeping.' He also added that I have to have 'true' sleep if wanted to stay clean of my seizures.
Do anything you have to do to get the get the hubby sleeping properly.
Best of luck and hope all goes well.
Julie
Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: "Staci Waites" <swaites2003@yahoo.com>
To: <epilepsy@yahoogroups.com>
Sent: Monday, May 31, 2010 11:54 AM
Subject: Re: [epilepsy] Re: My daughter experiencing seizure like activity last night
Before our diagnosis of sleep apnea, I would sit there at night and count how many times my husband quit
breathing in one night. Sometimes it would be so bad that I would panic and wake him up. Other times I would
catch him have his nocturnal seizures. When I brought it up to the epileptologist, he discussed sleep apnea.
My husband epileptologist and sleep specialist feel that his sleep apnea and lack of sleep are one of his main
triggers for his E. When we went for the sleep apnea test, it showed that my husband quit breathing numerous
times throughout the night. Sometimes it would last for seconds, sometimes up to a little over a minute. Any
lack of oxygen to the brain is dangerous. The dr thinks that when my husband quits breathing, his brain goes
into shock and it triggers a seizure. Sometimes the situation is severe and wakes my husband up. The study
also showed that sometimes he just breaks his sleep cycle. He hardly makes it into REM sleep because he
arouses during his cycle do to the lack of oxygen. This causes him to feel like he is not getting enough real
rest and in turn triggers more seizures for him.
It might be something worth checking in to. They sent him to a sleep lab. Put a bunch of wires and what not on
him and measure his breathing, brain activity, and muscle activity during his sleep. It gave us alot of
details that have helped us. Its noninvasive and couldnt hurt to try.
________________________________
From: Cristin Filipuzzi <cristinfilipuzzi7@yahoo.ca>
To: epilepsy@yahoogroups.com
Sent: Mon, May 31, 2010 12:26:47 PM
Subject: Re: [epilepsy] Re: My daughter experiencing seizure like activity last night
Hi Stacey. Is the sleep apnea what actually causes your husbands seizures? I am wondering if this is
possible with my daughter. On my daughter's EEG it does show an abnormality during the second stage of sleep.
Do you think that there might be a connections with this?
When my daughter cannot breathe, she wakes up and remembers this. She cannot even get in one breath. Her
face turns blue. She is so scared of this.
________________________________
From: Staci Waites <swaites2003@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Mon, May 31, 2010 11:10:40 AM
Subject: Re: [epilepsy] Re: My daughter experiencing seizure like activity last night
Cristin,
Is it possible that her period of not breathing while sleeping could be related to sleep apnea...and then the
loss of oxygen triggers the seizure? This is what happens to my husband. His epileptologist sent him to a
sleep specialist. He was dx with severe sleep apnea and the loss of oxygen effected his E. Just an idea from
personal experience.
Staci
--- In epilepsy@yahoogroups.com, "cristinfilipuzzi7" <cristinfilipuzzi7@...> wrote:
>
> Hello. My daughters seizures started in January 2009. She has had 5 seizures. Before each one she cannot
> breath in any air. She makes this gasping choking sound that lasts for about 30 seconds to one minute and
> then the seizure kicks in and she does not remember anything else. This alwasys happens while she is
> sleeping. Last night shortly after falling asleep she all of the sudden lifted up her head and turned
> around. I asked her if she was ok. After asking her a few times she said yes. And then told me a few minutes
> later that she felt the same kind of feeling before she had the other seizures, but she controlled it. She
> was to scared to go back to sleep. This has happened once in the past as well. Does anyone know what might
> be going on? Thankyou. Cristin Filipuzzi
>
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
------------------------------------
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply
to them. This is especially important if you are on digest. This not only helps out the list owner but, it
makes messages much easier to read when they arrive in our inboxes.
Yahoo! Groups Links
Re: [fast5] Re: konjac
Hee hee. Well, those people were eating other stuff besides konjac. Konjac is actually digested, so it doesn't add to bulk. Rather the reverse, actually, which is why I combine it with psyllium, which does add bulk. People who eat a lot of plant material ... much of the cellulose just isn't digestible at all.
I hear what you're saying, but two pound turds? Good Lord!!!
RE: [epilepsy] Re: My daughter experiencing seizure like activity last night
Great links thanks. I have also read about a type of seizure known as
Central Ichtal Apnea. Our daughter frequently complains; "my throat is
thinking again". We can not figure it out.
Aina & Pat DeLorenzo
CA DRE # 01052248 & 01231833
First Team Real Estate, First Team Estates
Orange County, California
949-362-1590
Find your next home here:
<http://www.condostocastles.com/> www.CondosToCastles.com
Exceeding your expectations for over 20 years
We appreciate your referrals keep them coming!
Sharing Better Health:
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Get the amazing free E-Book!
_____
From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com] On Behalf
Of Staci Waites
Sent: Monday, May 31, 2010 11:00 AM
To: epilepsy@yahoogroups.com
Subject: Re: [epilepsy] Re: My daughter experiencing seizure like activity
last night
Here is some websites that also discuss a relationship between sleep apnea
and epilepsy....
http://www.sciencedaily.com/releases/2000/10/001012074517.htm
http://professionals.epilepsy.com/page/pulmonary_sea.html
http://www.clinicaltrials.gov/ct2/show/NCT00047463
________________________________
From: Cristin Filipuzzi <cristinfilipuzzi7@yahoo.ca
<mailto:cristinfilipuzzi7%40yahoo.ca> >
To: epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com>
Sent: Mon, May 31, 2010 12:26:47 PM
Subject: Re: [epilepsy] Re: My daughter experiencing seizure like activity
last night
Hi Stacey. Is the sleep apnea what actually causes your husbands seizures? I
am wondering if this is possible with my daughter. On my daughter's EEG it
does show an abnormality during the second stage of sleep. Do you think that
there might be a connections with this?
When my daughter cannot breathe, she wakes up and remembers this. She cannot
even get in one breath. Her face turns blue. She is so scared of this.
________________________________
From: Staci Waites <swaites2003@yahoo.com <mailto:swaites2003%40yahoo.com> >
To: epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com>
Sent: Mon, May 31, 2010 11:10:40 AM
Subject: Re: [epilepsy] Re: My daughter experiencing seizure like activity
last night
Cristin,
Is it possible that her period of not breathing while sleeping could be
related to sleep apnea...and then the loss of oxygen triggers the seizure?
This is what happens to my husband. His epileptologist sent him to a sleep
specialist. He was dx with severe sleep apnea and the loss of oxygen
effected his E. Just an idea from personal experience.
Staci
--- In epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com> ,
"cristinfilipuzzi7" <cristinfilipuzzi7@...> wrote:
>
> Hello. My daughters seizures started in January 2009. She has had 5
seizures. Before each one she cannot breath in any air. She makes this
gasping choking sound that lasts for about 30 seconds to one minute and then
the seizure kicks in and she does not remember anything else. This alwasys
happens while she is sleeping. Last night shortly after falling asleep she
all of the sudden lifted up her head and turned around. I asked her if she
was ok. After asking her a few times she said yes. And then told me a few
minutes later that she felt the same kind of feeling before she had the
other seizures, but she controlled it. She was to scared to go back to
sleep. This has happened once in the past as well. Does anyone know what
might be going on? Thankyou. Cristin Filipuzzi
>
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
Re: [epilepsy] Re: My daughter experiencing seizure like activity last night
Here is some websites that also discuss a relationship between sleep apnea and epilepsy....
http://www.sciencedaily.com/releases/2000/10/001012074517.htm
http://professionals.epilepsy.com/page/pulmonary_sea.html
http://www.clinicaltrials.gov/ct2/show/NCT00047463
________________________________
From: Cristin Filipuzzi <cristinfilipuzzi7@yahoo.ca>
To: epilepsy@yahoogroups.com
Sent: Mon, May 31, 2010 12:26:47 PM
Subject: Re: [epilepsy] Re: My daughter experiencing seizure like activity last night
Hi Stacey. Is the sleep apnea what actually causes your husbands seizures? I am wondering if this is possible with my daughter. On my daughter's EEG it does show an abnormality during the second stage of sleep. Do you think that there might be a connections with this?
When my daughter cannot breathe, she wakes up and remembers this. She cannot even get in one breath. Her face turns blue. She is so scared of this.
________________________________
From: Staci Waites <swaites2003@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Mon, May 31, 2010 11:10:40 AM
Subject: Re: [epilepsy] Re: My daughter experiencing seizure like activity last night
Cristin,
Is it possible that her period of not breathing while sleeping could be related to sleep apnea...and then the loss of oxygen triggers the seizure? This is what happens to my husband. His epileptologist sent him to a sleep specialist. He was dx with severe sleep apnea and the loss of oxygen effected his E. Just an idea from personal experience.
Staci
--- In epilepsy@yahoogroups.com, "cristinfilipuzzi7" <cristinfilipuzzi7@...> wrote:
>
> Hello. My daughters seizures started in January 2009. She has had 5 seizures. Before each one she cannot breath in any air. She makes this gasping choking sound that lasts for about 30 seconds to one minute and then the seizure kicks in and she does not remember anything else. This alwasys happens while she is sleeping. Last night shortly after falling asleep she all of the sudden lifted up her head and turned around. I asked her if she was ok. After asking her a few times she said yes. And then told me a few minutes later that she felt the same kind of feeling before she had the other seizures, but she controlled it. She was to scared to go back to sleep. This has happened once in the past as well. Does anyone know what might be going on? Thankyou. Cristin Filipuzzi
>
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]