You only take it certain days of the month, and then taper off. Before they start you on it, they have to run your blood and hormone levels to see if you're a candidate. It's not exactly like the progesterone in your body I guess--I was worried about taking it--risks of breast cancer, etc...
It's a lot to think about. I'm not sure if anyone on this list takes it besides myself?
elizabeth
----- Original Message -----
From: NYgirl789
To: epilepsy@yahoogroups.com
Sent: Sunday, September 30, 2012 9:09 PM
Subject: [epilepsy] Re: speech problems since stopping BCP....and I have epilepsy
I was looking into it more and I don't want to take progesterone by itself. We'll see what the neuro. says next week. I appreciate your replies!
--- In epilepsy@yahoogroups.com, "Elizabeth Quinn" <equinn76@...> wrote:
>
> Hi,
>
> I was originally part of a study out of Beth Israel in Boston. It turned out the progesterone may only help a little for some people, but I know it pretty much killed my migraines. It was prescribed by a neuroendocrinologist originally, but my neurologist continues to refill it. It comes as a losenge--it's a compounded medicine. Mass General in Boston runs a database regarding pregnancy and which pills affect it, children, etc...My insurance covers the progesterone, which is good!
>
> elizabeth
>
>
> ----- Original Message -----
> From: NYgirl789
> To: epilepsy@yahoogroups.com
> Sent: Sunday, September 30, 2012 2:03 PM
> Subject: [epilepsy] Re: speech problems since stopping BCP....and I have epilepsy
>
>
>
> Who ended up prescribing the progesterone? Your ob/gyn or neurologist? I see the neuro on 10/8 and the gyn (annual appt.) 2 weeks later. I've read about catamenial epilepsy and had thought about the progesterone as well, also knowing that BCP generally a combination. I would assume the neuro would ask that my gyn prescribe it.
>
> --- In epilepsy@yahoogroups.com, elizabeth <equinn76@> wrote:
> >
> > Hi,
> >
> > Yes, my seizures are definitely triggered by hormones (catamenial epilepsy). What a surprise :) I take extra progesterone each month. I asked about BC, and I had to go through 4 doctors...the answer was no. the common BC pill is a combo, and the estrogen triggers seizures.
> >
> > I only experienced major problems when I took Topamax...word recall, etc. Now I have very few speech issues.
> >
> > elizabeth
> >
> > Sent from Samsung mobile
> >
> > NYgirl789 <sixkristy6@> wrote:
> >
> > >
> > >Thank you Teri. I know that my epilepsy is largely affected by hormones. My Dr. is amazing, I have worked with him for 17 years. I don't know how this is going to be addressed, but I am wondering if he will increase my Lyrica (increasing the Lamictal only causes more problems).
> > >
> > >:)
> > >
> > >
> > >
> > >--- In epilepsy@yahoogroups.com, Terri Sutten <terrisutten@> wrote:
> > >>
> > >> Yes I have. Hormones play a part in it especially around the time of the month or when ur pregnant or during menopause. I had my speech messed up completely for over a year when I stopped breathing and they did CPR.
> > >> I had to sit down and read out loud saying all the words I finally stopped stuttering, but it was a hard road to be on. I hated doing that and I understand your frustration. Don't give up.
> > >> Terri
> > >>
> > >> Sent from my iPhone
> > >>
> > >> On Sep 28, 2012, at 6:16 PM, "NYgirl789" <sixkristy6@> wrote:
> > >>
> > >> > Hi everyone,
> > >> >
> > >> > I am 34 years old and was diagnosed with epilepsy when I was 16. About 10 years ago, I was taking Dilantin and Neurontin (and at the time it was working well for me). I also started taking BCP for the first time.
> > >> >
> > >> > Before starting the BCP, my speech was strange. I would slur my words, use words out of context, or sometimes stutter. I sometimes sounded like I was drunk. It would happen for 1 or 2 words in a sentence and not all of the time. I went on BCP and it stopped.
> > >> >
> > >> > I have only been off BCP once during the last 10 years, for about 2 months before I got pregnant.
> > >> >
> > >> > I forgot all about the fact that I had this problem with my speech until a few weeks ago.
> > >> >
> > >> > I stopped BCP about 2 or 3 months ago due to borderline high BP. I am currently taking Lamictal and Lyrica, which is the best combo. I have tried. I have been taking these 2 together for 7 years.
> > >> >
> > >> > Recently, my speech started getting messed up again. I will be talking, and I start to stumble over my words, so I have to slow down and say each word slowly until I get back on track. Sometimes I slur, sometimes I lose my train of thought entirely. I am forgetful, and my words are out of order in a sentence.I might want to say "In 2 days I am going to Disneyworld." However, instead, I will say "In 2 months, no 2 weeks, ugh 2 DAYS!!" Sometimes I have a delayed response to someone, but it's because my brain is thinking what I want to say, but it's like it cannot process it.
> > >> >
> > >> > Today, I was at the deli, and I ordered a 1/2 lb. of ham. The deli worker asked me how much I wanted, since she forgot what I told her. It took me a few seconds to figure it out.
> > >> >
> > >> > My mother has told me forever that she thinks my epilepsy (cause is unknown) have something to do with my hormones. I am starting to wonder the same thing.
> > >> >
> > >> > Has anyone had this problem? I have an appt. with my neurologist in a week and a half.
> > >> >
> > >> > Thanks,
> > >> > Kristy
> > >> >
> > >> >
> > >>
> > >>
> > >> [Non-text portions of this message have been removed]
> > >>
> > >
> > >
> >
>
>
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>
>
> [Non-text portions of this message have been removed]
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