Hi,
I was originally part of a study out of Beth Israel in Boston. It turned out the progesterone may only help a little for some people, but I know it pretty much killed my migraines. It was prescribed by a neuroendocrinologist originally, but my neurologist continues to refill it. It comes as a losenge--it's a compounded medicine. Mass General in Boston runs a database regarding pregnancy and which pills affect it, children, etc...My insurance covers the progesterone, which is good!
elizabeth
----- Original Message -----
From: NYgirl789
To: epilepsy@yahoogroups.com
Sent: Sunday, September 30, 2012 2:03 PM
Subject: [epilepsy] Re: speech problems since stopping BCP....and I have epilepsy
Who ended up prescribing the progesterone? Your ob/gyn or neurologist? I see the neuro on 10/8 and the gyn (annual appt.) 2 weeks later. I've read about catamenial epilepsy and had thought about the progesterone as well, also knowing that BCP generally a combination. I would assume the neuro would ask that my gyn prescribe it.
--- In epilepsy@yahoogroups.com, elizabeth <equinn76@...> wrote:
>
> Hi,
>
> Yes, my seizures are definitely triggered by hormones (catamenial epilepsy). What a surprise :) I take extra progesterone each month. I asked about BC, and I had to go through 4 doctors...the answer was no. the common BC pill is a combo, and the estrogen triggers seizures.
>
> I only experienced major problems when I took Topamax...word recall, etc. Now I have very few speech issues.
>
> elizabeth
>
> Sent from Samsung mobile
>
> NYgirl789 <sixkristy6@...> wrote:
>
> >
> >Thank you Teri. I know that my epilepsy is largely affected by hormones. My Dr. is amazing, I have worked with him for 17 years. I don't know how this is going to be addressed, but I am wondering if he will increase my Lyrica (increasing the Lamictal only causes more problems).
> >
> >:)
> >
> >
> >
> >--- In epilepsy@yahoogroups.com, Terri Sutten <terrisutten@> wrote:
> >>
> >> Yes I have. Hormones play a part in it especially around the time of the month or when ur pregnant or during menopause. I had my speech messed up completely for over a year when I stopped breathing and they did CPR.
> >> I had to sit down and read out loud saying all the words I finally stopped stuttering, but it was a hard road to be on. I hated doing that and I understand your frustration. Don't give up.
> >> Terri
> >>
> >> Sent from my iPhone
> >>
> >> On Sep 28, 2012, at 6:16 PM, "NYgirl789" <sixkristy6@> wrote:
> >>
> >> > Hi everyone,
> >> >
> >> > I am 34 years old and was diagnosed with epilepsy when I was 16. About 10 years ago, I was taking Dilantin and Neurontin (and at the time it was working well for me). I also started taking BCP for the first time.
> >> >
> >> > Before starting the BCP, my speech was strange. I would slur my words, use words out of context, or sometimes stutter. I sometimes sounded like I was drunk. It would happen for 1 or 2 words in a sentence and not all of the time. I went on BCP and it stopped.
> >> >
> >> > I have only been off BCP once during the last 10 years, for about 2 months before I got pregnant.
> >> >
> >> > I forgot all about the fact that I had this problem with my speech until a few weeks ago.
> >> >
> >> > I stopped BCP about 2 or 3 months ago due to borderline high BP. I am currently taking Lamictal and Lyrica, which is the best combo. I have tried. I have been taking these 2 together for 7 years.
> >> >
> >> > Recently, my speech started getting messed up again. I will be talking, and I start to stumble over my words, so I have to slow down and say each word slowly until I get back on track. Sometimes I slur, sometimes I lose my train of thought entirely. I am forgetful, and my words are out of order in a sentence.I might want to say "In 2 days I am going to Disneyworld." However, instead, I will say "In 2 months, no 2 weeks, ugh 2 DAYS!!" Sometimes I have a delayed response to someone, but it's because my brain is thinking what I want to say, but it's like it cannot process it.
> >> >
> >> > Today, I was at the deli, and I ordered a 1/2 lb. of ham. The deli worker asked me how much I wanted, since she forgot what I told her. It took me a few seconds to figure it out.
> >> >
> >> > My mother has told me forever that she thinks my epilepsy (cause is unknown) have something to do with my hormones. I am starting to wonder the same thing.
> >> >
> >> > Has anyone had this problem? I have an appt. with my neurologist in a week and a half.
> >> >
> >> > Thanks,
> >> > Kristy
> >> >
> >> >
> >>
> >>
> >> [Non-text portions of this message have been removed]
> >>
> >
> >
>
[Non-text portions of this message have been removed]
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