Steve,
Obviously I can only tell you what I did. When I reached 3 years post
op I talked to my epileptologist about reducing my meds. She took me
off Topomax first. First she told me "if something is going to happen,
we wil know pretty quickly". What she told me that really helped me was
"we know what combination works, so as we reduce them if you were to
have a seizure, we know exactly what and how much to put you on". This
made me feel better, because it was a safety net. I didn't want to have
a seizure, but I had to know if I could handle being on less meds.
Besides the decision to have surgery, reducing my meds is the best
medical decision I have made. When I started the reduction I was on 3
meds, and a lot of them. I am completely off Topomax, I have switched
to generic Trileptal and on less of it. I have not had a seizure. The
reduction is side effects has been wonderful!!! I honeslty think that
reducing my meds really helped me go back to being more of the me from
before because my head is so much clearer and I am so much less temper
mental.
The nice thing is, if I were to have a seizure, we know what combination
to put me on. There would be no trial and error period this time of
this drug that drug, this much that much.
I wish you luck in your decision, I know for me there was a lot of fear
in making the decision because a seizure would mean no driving again.
But, jumping off that proverbial cliff has turned out wonderful for me.
Kelly
On 11/25/2011 8:58 AM, Steve wrote:
>
> Hi everybody,
>
> I would like to hear your experiences in reducing meds after surgery.
>
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