[epilepsy] Re: Surgery, reducing meds.

 

Hi Susan,

I'm on Trileptal 750mg x 2 and Keppra 1500mg x 2 each day.

Steve

--- In epilepsy@yahoogroups.com, Susan Wain <susan.wain@...> wrote:
>
> I've been on Trileptol for a  year and the only side effect is extreme fatigue but....after being on Depakote I'll live with that!!!!!!!!  Do U have to reduce your meds when you are seizure free as I want to feel good and I dont' want to have a seizure if my meds are reduced.  I'm on 950 of Trilepol per day.
>
>
>
> ________________________________
> From: Kelly Porter <race_12_1@...>
> To: epilepsy@yahoogroups.com
> Sent: Friday, November 25, 2011 5:02 PM
> Subject: Re: [epilepsy] Surgery, reducing meds.
>
>
>
>  
>
> Steve,
>
> Obviously I can only tell you what I did. When I reached 3 years post
> op I talked to my epileptologist about reducing my meds. She took me
> off Topomax first. First she told me "if something is going to happen,
> we wil know pretty quickly". What she told me that really helped me was
> "we know what combination works, so as we reduce them if you were to
> have a seizure, we know exactly what and how much to put you on". This
> made me feel better, because it was a safety net. I didn't want to have
> a seizure, but I had to know if I could handle being on less meds.
>
> Besides the decision to have surgery, reducing my meds is the best
> medical decision I have made. When I started the reduction I was on 3
> meds, and a lot of them. I am completely off Topomax, I have switched
> to generic Trileptal and on less of it. I have not had a seizure. The
> reduction is side effects has been wonderful!!! I honeslty think that
> reducing my meds really helped me go back to being more of the me from
> before because my head is so much clearer and I am so much less temper
> mental.
>
> The nice thing is, if I were to have a seizure, we know what combination
> to put me on. There would be no trial and error period this time of
> this drug that drug, this much that much.
>
> I wish you luck in your decision, I know for me there was a lot of fear
> in making the decision because a seizure would mean no driving again.
> But, jumping off that proverbial cliff has turned out wonderful for me.
>
> Kelly
>
> On 11/25/2011 8:58 AM, Steve wrote:
> >
> > Hi everybody,
> >
> > I would like to hear your experiences in reducing meds after surgery.
> >
>
> [Non-text portions of this message have been removed]
>
>
>
>
> [Non-text portions of this message have been removed]
>

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