[epilepsy] Re: Does this sound like epilepsy???

 

Thanks for responding Julie. I'm assuming that I'll be seeing an epileptologist, as I'll be at an epilepsy clinic.

I really don't feel terribly stressed right now, nor did I when all this started. From what I've read about pseudoseizures, they are normally stress-induced, and often stem from traumatic childhood events. The one thing that does bother me is the neurologist who was treating me at the hospital gave me only 4 doses of epilepsy meds, decided I wasn't responding, and then said it wasn't epilepsy at all. The only treatment I'm receiving right now is xanax, which my family doctor is hoping--and so far has--will stop the seizures until I can get to the epilepsy clinic.

I also can't decide if I should request my full medical record, or just the tests that were done (ct-scan, mri, eeg, bloodwork, ekg). I want an unbiased second opinion, and I don't know what other information is in the doctor's notes.

I do know that some of the nurses' notes were biased, as I read them after the neuro changed his mind. My son had taken Keppra, and was taking 3500mg/day, and they were starting me on 1000mg, saying that was based on weight. My son was only about 120lb at diagnosis, and they started him on 1500mg/day. I questioned the nurse about the dosage, and her notes in my file read like I was a junkie looking to score drugs.

We were very frustrated with the lack of explanation we received at our local hospital, but are hopeful that the information we get at a large epilepsy clinic will be more detailed and explained to our satisfaction.

Dawn

--- In epilepsy@yahoogroups.com, "Julie Hope" <epilepsyhealth@...> wrote:
>
The best dr to explain and diagnosis them to you is an epileptologist who deals with
> epilepsy alone. He told us after that most people with epilepsy also have pseudo ones. That pseudo were to be
> taken just as serious as the real ones and also given basically the same med. in order to control.
> You could very well had a type of seizure earlier in your life and not realized what it was. Many people do
> and therefore don't get diag. until later on.
> Please feel free to contact me any time. I know I have had pseudo ones now and then (Generalized GM. are the
> main ones, but have all types) even though they have not been diag.
> Best of luck to you
> Keep smiling
> Julie
> Julie Hope
> epilepsyhealth@...
> http://www.2betrhealth.com

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