Wednesday, December 31, 2014

[epilepsy] Suggestion for further group visibility

 

Hi 
Just a personal suggestion. 
I think that if we had a website and on it a link to our group....anytime people google stuff about Epilepsy, they would see our site ...possibly visit it and see the link and decide to or not to join. 

I can build a free website through WIX....It can contain up to 6 pages. 
Again, in my opinion, it would be nice to have a page dedicated to the cases of our group members. 
I.E. Each person would do a write up indicating, first name only, age, ..how long they've suffering from epilepsy....Whether they have it under control ? How long under control ? Medications they've been on and are on. 

Another page: Each of you could write up about Side Effects of medications you've experienced.

Another page:  Eventful seizures which occurred to you (in reference to circumstances and places) : i.e. My son had his at the cinema the other day. 

....And am sure that together we could think of what to fill the other 2 pages with. ...

Of course, it would require each of you contributing to this project by sharing many of your own stories....

...But I think that if the link to the support group would be on it and after others read all of these accounts, people could be interested to join. 

Thanks
Simy 

 

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