Your post is interesting to me, too. Most of my grand mal seizures have been nocturnal, and I agree it's totally wrong to stop one's medication altogether especially if it's suddenly, although I did at one time. I didn't have problems at all, mainly due to reducing the stress in my life, but when the seizures and all related symptoms returned...boy did they ever.
What I've done now is just reduce the amount of one of my seizure medications, keppra, to avoid feeling over medicated and, to get back to the point, not be totally dysfunctional.
Again, the catch 22 is being totally dysfunctional (neurologically) because of of seizures or being being totally dysfunctional from being too medicated. I'm trying to find a happy medium.
--- In epilepsy@yahoogroups.com, "DorisY" <dorisellen@...> wrote:
>
> Hi Tim,
> Stopping drugs completely is definately not the way to do it.
> I have had epilepsy for ages too, since 1962, and I have had the
> surgery for this. I still get seizures and still take drugs,
> presently Lamictal. Seizures post surgery are better in a way since
> they only occur when asleep. A little less than two years ago, my
> son at age 41 stopped taking what he was taking for epilepsy and
> this resulted in his dying in his sleep. Gosh there are things we
> don't understand sometimes, but it is clear that stopping your drugs is not the way to go under any circumstances. Take care,
> Doris
>
> --- In epilepsy@yahoogroups.com, Yahoo Mail Centre <tbb1@> wrote:
> >
> > rsejr12345,
> > Since being diagnosed with epilepsy 38 years years ago,I wonder if I actually
> > have epilepsy or if I just had a couple of seizures that were possibly brought
> > on because of abuse of other drugs(beer+pot).Since being on anti-seizure
> > drugs,I've had seizures.Reduction of drugs reduced my seizures frequency.I
> > wonder if being on no medicine if seizures would just go away.Maybe that's why
> > drugs have never been fully therapeutic,I wonder if it's because me being on
> > drugs that aren't needed.
> > Tim Baldwin
> >
> >
> >
> >
> > ________________________________
> > From: rsejr12345 <rsejr12345@>
> > To: epilepsy@yahoogroups.com
> > Sent: Mon, September 17, 2012 10:02:40 PM
> > Subject: [epilepsy] Catch 22
> >
> > Â
> > Having epilepsy is like being trapped in a catch 22. One can take a ton
> > of medicine and be somewhat dysfunctional from them, or one can take
> > less medicine or one can take less medicine and be dysfunctional because
> > of the seizures and other neurological symptoms.
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
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