I have had epi for over 45 years - the result of - it is thought - encaphilitis, tho the friends I was with at the time thought I had flue. I too am on tegretol & Keppra- and have been for about 12 years. It was 100% controlled until the Keppra was changed to the generic a couple of years ago and I had a seizure. I have been back on the real stuff for 9 months now and am crossing my fingers that things will stabilise again. My memory is atrocious and getting worse. I write notes all the time, have software popups on the computer to remind me of appointments, I take photos to remind me of holidays - these are fairly easy to cope with, my real problem is talking to people - I can't remember current affairs, books I've read, films, people and their names - I can't say 'who are you?'......but you find ways, I respond to a smile with an equal smile etc. Think of the past when people lived their lives without revealing that they were unable to read. We cope - you are not alone.
Posted by: a.s.hines@btinternet.com
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