Wednesday, June 17, 2015

RE: [epilepsy] Petite Mal Syndrome

 

Hi Kevin

 

My thoughts are with you….  My son has epilepsy and the OCD – I guess that is me.  The OCD gets in the way oftentimes, but that is part of my make-up and makes who I am.   It has many positives too – I do not kid myself – there are many advantages to that as well.  Everything in life is a pendulum swinging back and forth.  In my opinion, OCD is not comparable with the challenges of epilepsy and no doubt the person with epilepsy has the biggest challenge.  As a dad, I suffer from the fact that I cannot do anything to correct the epilepsy – I would give anything and do anything to change the epilepsy factor.

 

Please stay strong and try to not have thoughts of hurting yourself.  Talk to your family – they may not know/see it.  Even with the struggles (and there seem to be way too many than necessary these days  – especially when health is concerned) our lives are indeed worthwhile.  I was devastated when I heard the health aspects of my son at age 5, but would not give one moment up… not one split second.  He is approaching 30 years old.  The rough epilepsy ride makes up his life and mine.  I wondered if he did not have the health issue, would he be the fine, beautiful person he is.  I love my son for who he is – epilepsy and all - how strong he is and I stand tall beside him.  I need him.  I have no doubt your family feels the same.

 

I am not on the internet much but am glad you visited the forum – we have some good people here.  Please talk with your family and friends. 

 

Harry

 

From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com]
Sent: Wednesday, June 17, 2015 7:31 AM
To: epilepsy@yahoogroups.com
Subject: [epilepsy] Petite Mal Syndrome

 

 

This is supposed to be an online support for people with epilepsy.
I was born with a Teratoma in the right side of my brain, following brain surgery I developed Petite Mal Syndrome. I am on 360mg a day of Dilantin for Petite Mal Syndrome I am having a terrible time dealing with the suicidal thoughts caused by Dilantin, I am on 10mg a day of Zyprexa and 80 mg a day of Prozac to fight these thoughts.I was also born with major OCD.a guy who has both Epilepsy and OCD got me kicked out of the OCD online support group.
Would appreciate hearing from any one dealing with the side effects of Dilantin used to treat Petite Mal Syndrome
Thank You,
Kevin B. Duffee

Sent from my iPad

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