Robert,
When I was Diagnosed (DX) with EP 50 years ago-- I was told that I
would be on drugs the rest of my life. Why a Dr. wants to take you off meds is
beyond me. I have been on a few different meds -- But I have been on Dilantin
and Phenabarb for over 20 years. My Dr. would never dream of taking me off
meds -- although I have been sz free for over 5 years.
I take 3 Dilantin Brand --- not the generic-- Mon, Wed and Fri and 4 the other
days plus 4 Phenabarb 30 mg every day. Dilantin and Phenabarb are 2 of the
oldest meds and so are not as expensive as the new ones.
My Dr. says " If it isn't broke --don't fix it.". If I wanted to change meds he would
probably send me to another Dr. My Dr. is my family Dr.
You are right--Just because these meds work for me -- doesn't mean they will
work for anybody else.
I get my blood tested every year . And if I do have a sz-- He has me get my blood
tested again.. and then works with whatever the blood test told him.
Millie
----- Original Message -----
From: robert jones
To: epilepsy@yahoogroups.com
Sent: Sunday, April 15, 2012 9:01 PM
Subject: [epilepsy] Medications type and strength
I have found that what ever medication are combination that works for you are the ones to take. In 1993 I was placed on dilantin with keppra added later. I worked every work day for 7 years before I retired with only one minor event. In 2005 they told me I no longer needed meds. For almost 2 years I did not have any problems then in 2007 I had one in may another in July. At first it was thought to be heart problems so I had test and had a pacemaker inplant. I continued to have problems so they put me back meds. I wanted to go back to the old meds but the doctors wanted me to stay on others. They have never been able to find a reason for the seizures after many years and numerious test. They even wanted to put me in the hospital for up to 6 months hooked up to maybe catch me having a seizure, average event is one every 2 to 3 three months. I have even gone almost 7 months without one being observed. I had to change doctors and I had him change me back to dilatin and since the symptons and number of events have been reduce. I use to need a towel at night as I drooled on the pillow while sleeping since the change to dilantin I have not had that problem so what works for you is what is best for you. He added keppra and I went almost 4 months without an event, he increased the strength of the keppra 2 months ago and so far it seems to be working So right now I am in a wait and see status. So I would say if your meds dont seem to be working ask about having them changed are there strenth changed. I love to drive but it has been almost 5 years, since I have and I so much want to be able to go without asking for a ride are feeling like it is an imposition on others. So much to learn about this terrible inflictiom. But dont ever give up !!!!!!!
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