[epilepsy] Our daughter Jane also died of SUDEP & our blog

 

Hi, just saying hello. You can read about our daughter Jane on our blog http://www.forjane.co.uk/ which is also there to help raise awareness about sudep.

Although we're based in Oxford, UK the blog is aimed at a global audience. A feature of the blog is a list of links to webpages about others who have also died. There are nearly 200 people listed.

If you know of someone who would want to be added to the list, please tell them to contact me - andyswarbs at gmail.com or through this group. Also I try to ask permission (when I find an email etc of a page owner, next of kin), so if you recognize one of the names please ask the relevant person to contact me.

Hoping this post is okay on this group. I'm happy to answer questions on or off list.

Cheers
Andy

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