Re: [epilepsy] Re: File Onfi

 

I know this since starting Onfi my life has truly changed such as I look today I walked 6.5 miles, and no health issues no seizures whereas before I was taking this I was having tonic clonic seizures, and as well as others such as absence but it was so bad I was falling out of bed knocking everything off a stand next to my bed where now I've been on Onfi even though the price is quite high I'm no longer having tonic clonic, and less issues such as being able to walk without any seizures from being tired.  I just see all of that, and I see a very good medicine even though being on others.

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On Apr 1, 2015, at 10:53 AM, 'Robert' group@late-effects-radiotherapy.co.uk [epilepsy] <epilepsy@yahoogroups.com> wrote:

 

I think you are being ripped off by the drug companies. I had to look up what it was having never heard of it to see its generic name is Clobazam. In the UK Clobazam, only available generically, which in tablet form is extremely inexpensive. In suspension form it is much more expensive. However glad it helps you.

 

Robert

 

From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com]
Sent: 01 April 2015 15:05
To: epilepsy@yahoogroups.com
Subject: [epilepsy] Re: File Onfi

 

 

I just wanted to write to the group and tell them how well Onfi works.I had been on everything Including. Keppra,but would stil have at least one focal seizure every six weeks,Until my Neurologist from Yale, put me on Onfi. I no longer have focal or motor seizures. Onfi is approved by the FDA for some rare type of childhood seizures in which you have continuos Grand Mal seizures and is very expensive, so you will have to fight with your insurance company to get it approved, it has been available in Canada for years. I know of at least one member from the group who agrees with me,but I wish to retain their privacy.
Thank You,
Kevin

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Posted by: Joe <JDieng9@yahoo.com>

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