I have no idea what this is. It's been going on forever and I get to my doctor Thursday. Finally. I kept thinking it would go away so never tried to move my apointment sooner.
Have any of you ever been walking and started to trip and then catch yourself on a wall or whatever is nearby. It's like that in a way but there is nothing to trip over. It's worse in the afternoons. I don't know if I lose consciousness or not.
Also I have a lot of what might be muscle spasms. Kind of like I will by laying (lying down? Not sure what the right word is.) And my stomach will suddenly tighten or something like that. And times when my arms or legs will just 'fly out'. Meaning it will be by my body and then just, oh what's the right word?, jerk out so I have it all the way out like you do when in a jumping jack position but lying down. But only one arm or leg doing that and then it relaxes and I can put it back by my body.
I wish I could explain it but epilepsy and how your body moves is so hard to explain. But you've done or seen jumping jacks. It's like an arm or leg goes to that position for a second and then relaxes and I can put it where I want it. But only when lying down. When sitting my stomach will contract and then relax sometimes. And when standing, well an example is easiest to explain. This morning I was standing and had a bowl of oatmeal. I don't know exactly what happened but I lost control of my arms and dropped it. I don't know if I lost consciousness. I guess I lost control of my arms because I was eating suddenly dropped it. No chance to try to catch it like when you normally drop something. And most of my breakfast was on the floor.
I've taken Lamictal for almost 15 years. I take Ativan too when needed but that is hard to do in a preventative way. I take Lyrica for Fibromyalgia but that doesn't help my seizures. I got epilepsy in 1996 and before Lamictal tried all the other anti-seizure medicines. Either they didn't work or worked for a short time and then .
Fibromyalgia leaves me exausted most of the day. I have no way to afford an EEG or other tests. What I have as far as 'insurrance' is like a state Medicaid and helps with my having a copay for medicines and doctor's appointments but not tests like EEGs or specialists. My family doctor is good and I have no way to see a specialist right now.
Has anyone ever experienced anything like I described?
Posted by: sacornelius@msn.com
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