Friday, March 27, 2015

Re: [epilepsy] Seizure Types

 

I don't know many websites, but I have complex partials. I usually can tell a few minutes before I get ready to have a seizure. I just have enough time to sit down. I grit my teeth, and try to get up and move, but afterward I go right back to what I was doing. Usually very tired afterward. TC.

Tammy

From: "'Aina & Pat DeLorenzo' aina-pat@cox.net [epilepsy]" <epilepsy@yahoogroups.com>
To: epilepsy@yahoogroups.com
Sent: Friday, March 27, 2015 4:37:34 PM
Subject: RE: [epilepsy] Seizure Types

 

Hi Erin and all, you may find this most helpful. 

 

http://www.epilepsy.com/learn/types-seizures

 

Pat D

From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com]
Sent: Friday, March 27, 2015 1:17 PM
To: epilepsy@yahoogroups.com
Subject: [epilepsy] hi erin again

 

 

sorry to write so much.wanted to ask all i know is gran mal seizures.i know there are a bunch of different kind of seizures.Could someone recommend a website or advice what to look out for.


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Posted by: Tammy Mccoy <uniquepnk@tds.net>
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RE: [epilepsy] my medication

 

I take 900mg/day. I used to take much more but had side effect problems, especially double vision at 1400mg. I was OK at 1200mg. Then it needed to be lowered as my blood counts were still not recovering. I went to 1100mg then 1000mg and I stuck there for some years. I had started to take the meds three times a day in an effort to reduce the double vision, which worked a bit to reduce the worst of it. So at 1000mg I was supplied with 400mg tabs to take morning and night and 200mg to take midday. I then asked if I could reduce to 900mg to try to reduce some of the early morning sedation (part of which was due to Mysoline it has to be said) so to start off with I simply snapped a 200mg tablet for midday. Later I was issued with 100mg Tegretol (ordinary Tegretol) and I just take that at midday with the 400mg Tegretol Prolonged Release morning and night.

 

I have noticed there is Braille on boxes but didn't know this fails to include dose.

 

In recent times, maybe for a year now, I have been issued with the proper UK issue packs of 56 Tegretol Prolonged Release. I think this must be something to do with the pound to euro exchange rate. Maybe it was cheaper to buy in parallel imports back along and relabel and now it isn't!

 

Rob

 

From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com]
Sent: 26 March 2015 15:51
To: epilepsy@yahoogroups.com
Subject: RE: [epilepsy] my medication

 

 

Hi Robert

This is interesting as I have to break my tegretol especially the 200 mg tablets as I only need to take 1100 mg a day, the doctor gave me 1200 but I find that too much, it makes me feel ill. The 1100 is sufficient along with my ceppra. You evidently get the same boxes as I get here in France, I just wish they would put in braille the dosage on the box along with the name, they are pretty good here though as most drugs do have braille on them.

Regards

Adrien



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Posted by: "Robert" <group@late-effects-radiotherapy.co.uk>
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Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.


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