Saturday, August 1, 2009

Re: [epilepsy] Question?

 

Tristin,

When I was DX 47 years ago my Dr. told me that I could be without szs
for 20 years and they may come back. Are you on any meds?

Millie

> My boyfriend, Jamey, claims that I had a seizure today. He said we were
> talking, and I suddenly paused and started making moaning noises. He said
> I was unresponsive and was pinching myself. I find this hard to
> believe... I don't even remember having an aura. Should I tell my
> neurologist about this and risk losing my driver's license? I mean... I
> just bought a car last week! I already swore Jamey to secrecy, and I'm
> surely not going to tell any of my family. They will totally freak out!
> After 8 1/2 months of being seizure-free, I have a seizure? This can't be
> right. I guess you could say I'm in denial. If another one happens, I'll
> tell someone, but until then, I think I'm going to keep this to myself.
>
>
> Tristin
>
>

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Re: [epilepsy] Re: Need help understanding this...what do you think

THE POST BELOW in your e-mail SAYS THIS:
("I have epilepsy and post-ictal confusion. Transport at your
own expense." or "Do not transport unless you see blood." My daughter
and I have joked...)
Which I thought was a great idea-I think the post itself mentioned a t-shirt...or maybe it was another post on the subject of being taken to hospital during the confusion and difficulty communicating... That there is no need to be taken to hospital after years of experiencing seizures. Jen + Shadow
I try to be clear- right now I have difficulty. My dog could write better if his toes weren't so big!
Sent from my Verizon Wireless BlackBerry

-----Original Message-----
From: Cindy Shackleton <shackletoncindy@yahoo.com>

Date: Fri, 31 Jul 2009 22:34:02
To: <epilepsy@yahoogroups.com>
Subject: Re: [epilepsy] Re: Need help understanding this...what do you think







________________________________
From: "jenandshadow@yahoo.com" <jenandshadow@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Tuesday, July 28, 2009 3:55:05 PM
Subject: Re: [epilepsy] Re: Need help understanding this...what do you think

 
Tammy I love the T-shirt idea can someone design one?
Sent from my Verizon Wireless BlackBerry

-----Original Message-----
From: Tammy Wolfgram <tammy@maccetera. com>

Date: Tue, 28 Jul 2009 12:56:18
To: <epilepsy@yahoogroup s.com>
Subject: [epilepsy] Re: Need help understanding this...what do you think


Maybe those with seizures could wear t-shirts that say something
like, "I have epilepsy and post-ictal confusion. Transport at your
own expense." or "Do not transport unless you see blood." My daughter
and I have joked about this for a long time. Seems pointless to have
med alert jewelry if the paramedics just ignore it. She has post-
ictal confusion for a short period that gradually gets better, but it
is during that period that the paramedics are asking her questions.
Early on, she can't even speak! When she was away at college, each
transport cost over $700! And that doesn't count ER or any other
charges. I think the truth of the matter is that the paramedics and
fire departments are covering their own butts and protecting
themselves from any potential lawsuits by transporting just about
everyone they are called to see.

Tammy




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