I would say the meds gave you the reaction. My younger adult daughter has
E. My older one's partner has
E and drank too much, ended up in Univ. Hospital ER for 16 hours, almost
died. Anti-seizure meds and alcohol just don't mix. My daughter will have
a glass of wine with a meal now and then occasionally goes out with friends,
but is careful to limit her alcohol intake.
-Tim H.
Dani's Dad
On Fri, Feb 13, 2009 at 7:03 AM, <mylmy@bnin.net> wrote:
> Rach,
>
> I have always been told not to drink any alcohol while I am
> on EP meds.
>
> That is probably why you had a weide time and can't remember.
>
>
> > Hi to everyone,
> >
> > I thought I would do a group email to save me repeating myself about what
> > happened in my neurosurgeon appt.
> >
> > Unfortunately I am not currently eligible for brain surgery because my
> > seizures are generalised, not focal. I smell things that aren't there, I
> > have grand mal and petit mal... these together mean they aren't focal. So
> > I
> > was very dissapointed about that. He tested my balance and walking
> > STRAIGHT
> > with my eyes closed, and I couldn't do that. What can be done about that?
> > Medication change if it is indeed medication, or absolutely nothing. So I
> > had a bit of a cry.
> >
> > I may have wanted a "magic bullet" or something, but quite frankly more
> > than
> > that I just want a life. Part of my family just doesn't get it, and I
> > think
> > they think I am lazy because I am not working. This is NOT the case, and
> > Lord knows I am trying to find work that will fit into the seizures. It
> > would be much easier to cope with all this if I could just live under a
> > rock. I think it's partly hurting other people and inconveniencing them
> > that
> > makes it harder.
> >
> > The other option he said is hopping into hospital and getting wired up
> for
> > a
> > bit and inducing some seizures and seeing where they come from. If they
> > all
> > come from the same place then that would be great, it means it is focal.
> > Or
> > even if they got rid of SOME seizures then that is also brilliant. So we
> > shall see... My dad is all for more tests, however when asked I basically
> > said I don't care. I had resigned to it all.
> >
> > Actually, a weird thing happened 2 nights ago. I was out with a friend of
> > mine because we wanted to be together whilst he turned 18 at midnight.
> (18
> > being the legal age here). I ingested my medication as normal because I
> > keep
> > a spare packet in my bag. He entered a pub LEGALLY for the first time,
> and
> > we met some people and had a few beers together. Anyway, I remember
> > absolutely nothing after that. Apparently I got home at 5am, alone. Which
> > would have involved catching a bus alone and then walking for about an
> > hour.
> > My mate (the one who turned 18) said at about 2am I was acting weird, I
> > wasn't responding properly to questions, and was out of it and vague. For
> > example he said "Do you want another beer" and I said "Maybe. I don't
> > know.". Which is not my normal response!
> >
> > So the verdict is either it was a funny seizure (out of it but not
> falling
> > to the ground or pausing?) or I had a spiked drink. The latter is very
> > very
> > unlikely, but of course these days we just don't know. Either way it's
> > scary
> > that I was doing things whilst out of it and I have no memory.
> >
> > So.
> >
> > Feeling a bit low at the moment.
> >
> > ~ Rach
> >
> > --
> > "I ask people why they have deer heads on their walls. They always say
> > because it's such a beautiful animal. There you go. I think my mother is
> > attractive, but I have photographs of her." - Ellen Degeneres
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
>
>
>
--
My new blog 6/08 :
http://mensgrief.
"The mystery of God hugs you in its all-encompassing arms."-
- Hildegard of BingenIn
Suspense
"Only God can say what this new spirit gradually forming within you will be.
Give God the benefit of believing that God's hand is leading you and accept
the anxiety of feeling yourself in suspense and incomplete."
Teilhard De Chardin, SJ
[Non-text portions of this message have been removed]
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