Rach,
I have always been told not to drink any alcohol while I am
on EP meds.
That is probably why you had a weide time and can't remember.
> Hi to everyone,
>
> I thought I would do a group email to save me repeating myself about what
> happened in my neurosurgeon appt.
>
> Unfortunately I am not currently eligible for brain surgery because my
> seizures are generalised, not focal. I smell things that aren't there, I
> have grand mal and petit mal... these together mean they aren't focal. So
> I
> was very dissapointed about that. He tested my balance and walking
> STRAIGHT
> with my eyes closed, and I couldn't do that. What can be done about that?
> Medication change if it is indeed medication, or absolutely nothing. So I
> had a bit of a cry.
>
> I may have wanted a "magic bullet" or something, but quite frankly more
> than
> that I just want a life. Part of my family just doesn't get it, and I
> think
> they think I am lazy because I am not working. This is NOT the case, and
> Lord knows I am trying to find work that will fit into the seizures. It
> would be much easier to cope with all this if I could just live under a
> rock. I think it's partly hurting other people and inconveniencing them
> that
> makes it harder.
>
> The other option he said is hopping into hospital and getting wired up for
> a
> bit and inducing some seizures and seeing where they come from. If they
> all
> come from the same place then that would be great, it means it is focal.
> Or
> even if they got rid of SOME seizures then that is also brilliant. So we
> shall see... My dad is all for more tests, however when asked I basically
> said I don't care. I had resigned to it all.
>
> Actually, a weird thing happened 2 nights ago. I was out with a friend of
> mine because we wanted to be together whilst he turned 18 at midnight. (18
> being the legal age here). I ingested my medication as normal because I
> keep
> a spare packet in my bag. He entered a pub LEGALLY for the first time, and
> we met some people and had a few beers together. Anyway, I remember
> absolutely nothing after that. Apparently I got home at 5am, alone. Which
> would have involved catching a bus alone and then walking for about an
> hour.
> My mate (the one who turned 18) said at about 2am I was acting weird, I
> wasn't responding properly to questions, and was out of it and vague. For
> example he said "Do you want another beer" and I said "Maybe. I don't
> know.". Which is not my normal response!
>
> So the verdict is either it was a funny seizure (out of it but not falling
> to the ground or pausing?) or I had a spiked drink. The latter is very
> very
> unlikely, but of course these days we just don't know. Either way it's
> scary
> that I was doing things whilst out of it and I have no memory.
>
> So.
>
> Feeling a bit low at the moment.
>
> ~ Rach
>
> --
> "I ask people why they have deer heads on their walls. They always say
> because it's such a beautiful animal. There you go. I think my mother is
> attractive, but I have photographs of her." - Ellen Degeneres
>
>
> [Non-text portions of this message have been removed]
>
>
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