Does he have an IEP? Does it require a nurse to be with him at all school outings? This I would assume means community/job outings? How long is an outing? Although I know I had no idea what I wanted to do in high school, I did volunteer after school--if you feel uncomfortable letting him go, maybe this is something both of you could do together?
What would happen if the nurse couldn't administer the diastat? I understand wanting to let him go out into the world, and then there's the safety issue. Does he get an aura? Could he tell someone he's about to have a seizure?
elizabeth
----- Original Message -----
From: Janet
To: epilepsy@yahoogroups.com
Sent: Monday, March 05, 2012 1:56 PM
Subject: [epilepsy] school outings
My son is 16 with epilepsy and autism. Whenever he has gone on field trips etc from school a school nurse has been assigned to go with him in the event he needs his diastat.
Since last year my son has made great progress with his epilepsy. He has gone from 7 seizures a month to two a month.
Our school has community/job outings for students with disabilities. My son has no experience with work and has no idea what he would like to do after he graduates. For this reason I want to send him out to the job sites so that he can get some work experience and get an idea of what responsibility is. The students go out into the community several times a week for half a year.
The school nurse does not think he should go out without a nurse even though he is down to 2 seizures a month. The school is reluctant to pay for a nurse on a steady basis but they are afraid to send him out without one. They would prefer that he stay on campus.
What is anyones experience with this type of thing. Certainly we can't deny him opportunities until he is completely seizure free can we? On the other hand I don't want to disregard his safety.
And suggestions?
Thanks,
Jan
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