A big thanks to the many here who have shared important things
we experience in similar ways often too. I find it super special
that I can come here and read or write when I want to. Wishing
you all a super weekend. Happy 11-11-11 day!!!
Sincerely, Doris ☺
--- In epilepsy@yahoogroups.com, "uniquepnk tds.net" <Uniquepnk@...> wrote:
>
> Doris,
> Hi. I had the surgery on the LTL in 2004. There are some things such as
> memory issues that it changed for the worse. I can't concentrate long on
> anymore. Books and tv I just don't remember anything I watch or read much,
> so I just don't bother much. I can deal with that though. When I had to
> have somebody with me at all times before(25-30seizures a month) and now a
> couple every month. I get out and work with my flowers, cook more, without
> taking the chance of falling in the oven, and not sleep all the time. I am
> still on meds, but they have been cut in half. The seizures are not near as
> bad either. I had 2or 3 a day sometimes, then I would have to sleep the
> headaches off. Never have them anymore. There is just so many differences
> now. Take care.
>
> Tammy
> On Thu, Nov 10, 2011 at 9:52 PM, Steve <stephenpales@...> wrote:
>
> > **
> >
> >
> > Hi Doris,
> >
> > Like you I find it very interesting hearing from others who had surgery
> > concerning epilepsy. I had a LTL just over 5 years ago.
> >
> > I've been seizure free since surgery. It was totally my decision to NOT
> > reduce either my Keppra or Trileptal, my 2 meds.
> >
> > Changes on me since surgery:
> >
> > Self confidence increased allot
> >
> > Talking more than I ever have in the past!!!
> >
> > Accept my weaknesses allot more than before surgery
> >
> > My cognitive abilities are worse than before surgery, short term memory is
> > terrible! That has affected me in allot of ways in what I do in my free
> > time. I can't read and have music on at the same time. I lose focus easily
> > when reading. Most times I can't remember allot of what I read. Feel pretty
> > stupid (smile) but accept it, what more can I do?
> >
> > I also lost allot of my taste buds. I NEVER have an urge to eat a
> > particular food because of the taste. So, because of that I'm eating more
> > healthy foods. When I feel like munching, I get out the peanuts or grapes
> > simply because it's healthy. Rarely have a cookie or cake or potato chips
> > because all the tastes are the same, really!
> >
> > I've always been a participating sports bum even when NOT seizure free.
> > Now I'm up and out doing healthy things that much more! During the summer
> > out hiking the trails with groups in Meetup hiking from 8- 10 miles weekly
> > sometime both days on the weekend. About 5 weeks ago we hiked 21 miles in a
> > day around Geneva Lake in WI. And when on the quiet side before surgery,
> > now enjoy getting out with others who's interests are hiking and camping,
> > and can keep up my talking with them! Can't wait to go hiking on trails in
> > the snow this winter (smile) in groups with other addicts (smile)!
> >
> > Also, before surgery had seizures with to much time on the computer. I was
> > very light sensitive. Now rather than a seizure, can stay on the computer
> > as long as I like. Same with lights of all sorts that used to trigger
> > seizures.
> >
> > When stressed, it used to trigger seizures. Now, feel my hand shaking more
> > like before surgery but it goes no farther than that.
> >
> > Auras, every few months feel the most minor one seizure, no more than
> > that. Before surgery I had auras now and then but never before a seizure. I
> > averaged 1-7 complex partials each month with never a aura before a
> > seizure.
> >
> > That is all I can thing of right now. If anybody could use support you can
> > always email me at stephenpales@...
> >
> > Take care, keep a smile on your face.
> >
> > Steve
> >
> > I've been driving since (smile)!
> >
> >
> > --- In epilepsy@yahoogroups.com, "DorisY" <dorisellen@> wrote:
> > >
> > > As an epileptic, I would like to express something that I think would be
> > meaningful to many. Others who have had brain surgery, as I have,
> > > could talk about clear changes they have experienced and these would be
> > both understood and valued. I think others could share their ideas of
> > helpful methods of dealing with this as time passes and often changes
> > things in different ways.
> > >
> > > This is food for thought.
> > >
> > > Sincerely, Doris dorisellen@
> > >
> >
> >
> >
>
>
> [Non-text portions of this message have been removed]
>
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