Hi Shan,
Since you have been telling us about magnesium, I have been doing some research on the internet. Magnesium deficiency may have a negative affect on our bodies which may help many diseases and disorders when brought up to normal levels. That can be said of many if not most vitamins and minerals. From my research, I cannot find FDA approval or recommendation to use magnesium to treat epilepsy or any other disease/disorder. I wish it were that simple.
My doctors have advised me to take a multiple vitamin, and only one daily because the meds do deplete vitamins and minerals, but vitamins and minerals in excess of the recommended amounts can interfere with our meds. I have followed their advice to the letter and have not had a grand mal in 5 1/2 years. I also have other health problems, so I need to be careful about having anything interfere with my other meds.
I am happy to hear that magnesium is working so well for you! It could be tragic for others to use in the ways that you are recommending. I urge everyone to discuss any changes with their doctors before making them. Magnesium is not a proven and recommended treatment for epilepsy. Take care.
Terry
Sent from my iPhone
On Apr 21, 2010, at 1:18 AM, "Shan" <surpriseshan2@
Millie
If you are saying that you think you will have to reduce your drugs if you get your magnesium levels up - that is not true. If you want to continue taking your drugs, you can - it is up to the individual. You will not need the drugs if you get your magnesium levels up, but if you wish to continue taking your drugs because you feel safer that way, then do continue to take the drugs. And magnesuim will always protect you from having seizures as long as you keep your magnesium levels up. When I took drugs, they would stop me from having convulsions for about 10 years, and then I would have a dozy of a convulsion and most of the time we did not even know exacty what had caused it and why. Oh we knew that I was upset about something or other but we never knew why for 10+ years being upset hadn't caused me to have a seizure. Now I know that as long as I keep my magnesium levels up, it is physically impossible to have a seizure. Nature is much more reliable in
my opinion and experiance, then anything artifical. All it takes is understanding how it works to realize that.
It was not easy to reduce my drugs and I was scared stiff when I stopped them. I had been conditioned to believe that only drugs could stop the seizures. Two years after stopping the drugs and no seizures ,I was still holding onto the banisters when I went down the stairs as I worried what would happen if I had a convulsion on the stairs especially as now I live alone. One reason why I continue to find more studies and buy more books about magnesium is so I can confirm and assure myself that it is true what magnesium does and I keep reading how other doctors describe how it works too so I know it is not just one doctor's ideas... . I still need the comfit of reassuring myself. I hate that I was so conditioned that the only answer was drugs that I feel that way still every once in awhile. I do not like being manipulated and have absolutely no intention to give in to my fears though -anyways they are becoming less and less with time........ so now it is
rarely that I have those fears anymore..
blessings
Shan
--- In epilepsy@yahoogroup
>
> I did not have surgery but I have been sz free for 3 1/4 years. I am on Dilantin and Phenabarb
> and know that is what is keeping me sz free. So why would I want to use less and take a
> chance on szs starting again?
>
> Millie
>
>
>
>
>
> ----- Original Message -----
> From: Julie Hope
> To: epilepsy@yahoogroup
> Sent: Sunday, April 18, 2010 11:51 PM
> Subject: Re: [epilepsy] surgery statistics
>
>
>
> I think you are very wise Steve. You have had such good luck so far but cutting back or taking off I would be
> afraid to do. By taking something at least you have a back-up in case it does come back in say a few years.
> Nothing appears to last forever.
> Keep smiling and a big congrats Steve!!
>
> Julie
>
> Julie Hope
> epilepsyhealth@
> http://www.2betrhea
> ----- Original Message -----
> From: "Steve" <stephenpales@
> To: <epilepsy@yahoogroup
> Sent: Sunday, April 18, 2010 8:48 PM
> Subject: [epilepsy] surgery statistics
>
> Just wondering, has anybody seen studies done concerning reducing meds. after surgery as far as it being
> successful or not successful in staying seizure free after surgery?
>
> My Dr. suggested to me to get totally off my Keppra (3000mg. each day)taking one year to do so. If then still
> seizure free, cut back my Trileptal but not totally and remain on some the rest of my life. I said no to
> reducing my meds. I'm still seizure free. Just interested in statistics concerning that. My Drs. said no
> stats. where available since all surgeries are so different. Take care, keep a smile on your face!
>
> Steve
>
> ------------
>
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