Carol,
Welcome to our group. I did not have EP as a child nor do
I have a child with EP. I had my first sz when I was 26.
I was carrying my 2nd daughter and my 3rd sz when I was carrying
my 3rd daughter. When she was 2 -- I had another sz and that
took me 30 miles away at that time to the closest EEG machine.
There I found I had EP, couldn't drive for a year and would
be on meds for the rest of my life.
I grew up in a home where we never had aspirin and don't remember
going to a Dr. My dad was an organic farmer and talked against
drugs. So it took a while to get my mind to accept that meds
were going to be in my life-- for the rest of my life.
So I know what you are saying when you don't want to take meds --
but if that is the only way you don't have szs -- you do it.
Hopefully your daughter will not need to.
That was 46 years ago. When I was diagnosed (DX) I had 3 daughters
2, 4, and 6 plus a husband (now ex). My girls are all around 50.
I've had an apt in a retirement center for 12 years -- and love it.
I have been a home health aid for 25 years and am pretty well
controlled with Dilantin and Phenabarb. My last sz was 2 years ago
and before that it was 4 years. I drive and do volunteer work where
I live.
I'm glad you joined us. We are a friendly group with lots of
ideas and experiences.
Millie (Indiana)
> Hi everyone,
>
> My name is Carol; I am a mom in the Atlanta area. I joined this group due
> to my daughter's situation and I thought I could educate myself a little
> before her neurologist appointment next Monday. I would respectfully
> appreciate any info this community might be able to share with me based on
> my story.
>
> My 11 year old daughter Isabel went to a movie (Twilight) about a month
> ago. It was only her second time at a movie theater. So she is pretty
> sensitive; not desensitized to violence on the big screen. She had read
> the
> Twilight book, and we thought the movie would be OK. Even tho it was
> PG-13.
> NOT. Turns out there is a scene that was much too intense for her, and
> she
> ended up having what we think was a seizure.
>
> Her older sister Jessie (age 17) was sitting with her. I was not; they
> relegated me to the back of the theatre.
>
> At the end of the movie, I looked for them and they were not there. They
> were in the lobby. This is what Jessie described to me.
>
> Isabel fainted during the violent scene, and there was fire flickering in
> the scene; blood, and so much intensity; not for me, but for her; she's so
> tender still. so once she passed out , and jessie didn't know to lay her
> down or put her head down, she went into seizure mode, p'd her pants
> completely, was leaning head to the side a little, twitching a little,
> eyes
> open. Jessie couldn't get her to wake up. Jessie said it felt like
> Isabel
> was "out" for a whole minute, but later said, maybe not quite that long.
> Isabel didn't remember any of it, except for the fear she was
> experiencing,
> holding up her hand to block her view. When she came to, Jessie asked her
> if she wanted to leave, but Isabel wanted to watch the rest of the movie
> which was not so bad.
>
> Then the two girls left right when the credits started rolling (I still
> didn't know anything about this: wish Jessie had just stood up and called
> me
> or something). When they walked out, Isabel vomited a little into her
> hands. Poor kid.
>
> Afterward she was fine, just a little tired. Not upset or anything.
>
> I know that she didn't eat much that day. I was a fail of a mom that day;
> not cooking much food for the family, and then taking isabel to this movie
> out of her tolerance zone.
>
> I think that the lack of proper nourishment that day, maybe water too, may
> have had something to do with her tolerance being down.
>
> The pediatrician on the phone referred us to a ped. neurologist. we
> havent
> seen that doc yet, but isabel did have a sleep deprived eeg.
>
> results came back "abnormal" and we have an appointment with the
> neurologist
> monday.
>
> So it may be she has something going on that is there whether or not she
> saw
> the movie.
>
> I am hoping she won't have to go on any meds. There's never been an
> episode
> remotely like this for her before.
>
> I like to avoid meds if I can. Of course, not completely (i take
> antidpressants after resisting several years). so i try to strike a
> balance.
>
> Thanks for reading this (if you made it this far, haha) and hope you all
> have a great day.
>
> Carol
>
>
> isabel is super healthy and bright. She is slender.
>
>
>>
>>
>
>
> [Non-text portions of this message have been removed]
>
>
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