Tuesday, February 24, 2009

[epilepsy] First Time Posting

Hi everyone,

My name is Carol; I am a mom in the Atlanta area. I joined this group due
to my daughter's situation and I thought I could educate myself a little
before her neurologist appointment next Monday. I would respectfully
appreciate any info this community might be able to share with me based on
my story.

My 11 year old daughter Isabel went to a movie (Twilight) about a month
ago. It was only her second time at a movie theater. So she is pretty
sensitive; not desensitized to violence on the big screen. She had read the
Twilight book, and we thought the movie would be OK. Even tho it was PG-13.
NOT. Turns out there is a scene that was much too intense for her, and she
ended up having what we think was a seizure.

Her older sister Jessie (age 17) was sitting with her. I was not; they
relegated me to the back of the theatre.

At the end of the movie, I looked for them and they were not there. They
were in the lobby. This is what Jessie described to me.

Isabel fainted during the violent scene, and there was fire flickering in
the scene; blood, and so much intensity; not for me, but for her; she's so
tender still. so once she passed out , and jessie didn't know to lay her
down or put her head down, she went into seizure mode, p'd her pants
completely, was leaning head to the side a little, twitching a little, eyes
open. Jessie couldn't get her to wake up. Jessie said it felt like Isabel
was "out" for a whole minute, but later said, maybe not quite that long.
Isabel didn't remember any of it, except for the fear she was experiencing,
holding up her hand to block her view. When she came to, Jessie asked her
if she wanted to leave, but Isabel wanted to watch the rest of the movie
which was not so bad.

Then the two girls left right when the credits started rolling (I still
didn't know anything about this: wish Jessie had just stood up and called me
or something). When they walked out, Isabel vomited a little into her
hands. Poor kid.

Afterward she was fine, just a little tired. Not upset or anything.

I know that she didn't eat much that day. I was a fail of a mom that day;
not cooking much food for the family, and then taking isabel to this movie
out of her tolerance zone.

I think that the lack of proper nourishment that day, maybe water too, may
have had something to do with her tolerance being down.

The pediatrician on the phone referred us to a ped. neurologist. we havent
seen that doc yet, but isabel did have a sleep deprived eeg.

results came back "abnormal" and we have an appointment with the neurologist
monday.

So it may be she has something going on that is there whether or not she saw
the movie.

I am hoping she won't have to go on any meds. There's never been an episode
remotely like this for her before.

I like to avoid meds if I can. Of course, not completely (i take
antidpressants after resisting several years). so i try to strike a
balance.

Thanks for reading this (if you made it this far, haha) and hope you all
have a great day.

Carol

isabel is super healthy and bright. She is slender.

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