Hi Susan
Yes the certainly do change throughout the years. We can go a good long time and not much of anything and
then all of a sudden boom. Have to then start asking ourselves what changed. I would love to take in some
concerts too but know I couldn't handle them for sure. Would be ok during for the most part but after when
home and relaxed that is when I usually feel it.
Have to sometimes ask ourselves too what on earth type of seizure is this as never seen it before. That is me
anyway. Some are so hard or impossible to even try and explain too. Went shopping today and got through it ok.
For some reasons the stores weren't nearly as busy.
Julie
Julie Hope
epilepsyhealth@sasktel.net
----- Original Message -----
From: "Susan Wain" <susan.wain@yahoo.com>
To: <epilepsy@yahoogroups.com>
Sent: Monday, December 05, 2011 12:44 PM
Subject: Re: [epilepsy] (epilepsy) Funny type of Seizure
That's my prob too! I love Christmas and shopping and wrapping but I know I have to slow down and last year I
had to give up making cookies; I hope that I can do that this year as I miss it. What is aweful, too is that I
had to give up concerts as I get unbearable head pain and a seizure the next day. I have been going to Bon
Jovi concerts for the last 20 yrs and now I can't go as it makes me sick. I hope that I can "outgrow" this or
go into remission somehow as it has changed my entire life.
________________________________
From: uniquepnk tds.net <Uniquepnk@tds.net>
To: epilepsy@yahoogroups.com
Sent: Sunday, December 4, 2011 7:37 PM
Subject: Re: [epilepsy] (epilepsy) Funny type of Seizure
Julie,
My seizures have changed so much through the years,but they all tire me
out. Most of the time I sit down when I know one is going to happen, but
there is times when they are worse than others. When I have had them and
have not been sitting down, my boyfriend has to get me and make me sit
down. He has had to struggle with me to cooperate with him. It seems like I
am stronger than him and he is twice as big as I am.The seizures seem to be
worse the more upset or worried I am about something. I love shopping and
getting ready for Christmas,but I have had seizures in stores and at the
mall, which was awful. If I feel funny I try to stay out of them till I
start feeling normal again. Take care.
Tammy
On Sat, Dec 3, 2011 at 2:59 PM, Julie Hope <epilepsyhealth@sasktel.net>wrote:
> **
>
>
> Hi everyone
>
> Been so busy here that just haven't been around it seems....shouldn't be
> using as excuse though. But now am back.
>
> I know so well how seizures change their style as we go through life. I
> use to have the generalized grand mal and now after a long break am getting
> a lot of funny kind.
>
> I also know that you can have a GM on either both sides, or just one side
> or the other whichever it decides to do.
>
> This is like a GM in some areas but only in the legs from my knees down,
> shakes for a bit and then my whole legs go rubbery. This is when I have to
> sit down. Other symptoms: Not completely unconscious, appear to go in and
> out, if standing or going somewhere it is super hard for my hubby to grab
> me and stop me from behind. (guess am stubborn hey) Totally exhausted
> afterwards and while sitting am aware but can't seem to stop feels as my
> eyes are rolling clockwise super fast so can't see.
>
> This can happen any time but has been happening a lot lately if in big
> stores with a lot of commotion around it just drives me crazy and need
> somewhere to lean on.
>
> Anyone else had these kind of seizures? I have looked at different types
> and can't seem to find. The arms or top body don't jerk, only both legs.
>
> Julie
>
> Julie Hope
> epilepsyhealth@sasktel.net
>
>
> [Non-text portions of this message have been removed]
>
>
>
[Non-text portions of this message have been removed]
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