Thursday, April 22, 2010

Re: [epilepsy] Re: surgery statistics

 

Shan,
Probably europeans wouldn't have come to america, if the people here were already were having seizures.Epilepsy was first described as "The Sacred Disease" by Hippocrates in Greece between 460-377 B.C., also mentioned in India 400 B.C. by Charaka Samhita, described as "aspasmara" which means loss of consciousness. I wounder if having seizures,wasn't just brought here, when the europeans left the witchs and devils behind before, to invade (not in spaceships/saucers) a safer area of earth. They probably didn't know or care about europe or anyother neigborhood except for their land. This area of the world is in S.W. Europe, it wasn't even spoke of yet in N. or S. America. Maybe we should go somewhere w/o it; but then it will be there too.
Tim Baldwin

________________________________
From: Terry Martin <trm0818@yahoo.com>
To: "epilepsy@yahoogroups.com" <epilepsy@yahoogroups.com>
Sent: Wed, April 21, 2010 5:45:17 PM
Subject: Re: [epilepsy] Re: surgery statistics

 
Hi Shan,

Sorry that you cannot discuss a difference of opinion without becoming hostile. I have two medical doctors in my family and I know that nutrition is not taught as much as it should be in medical school. I am not a medical doctor, but I do not pretend to be an expert in treatments for epilepsy or any other condition.

I have recommended to my clients in the recent past to use proper nutrition along with behavior modification and family counseling to help to change behavioral problems in children that I worked with. I have had a good success rate in helping to change unwanted behavior, but I looked at the whole picture and not only one aspect. These children were also under the care of a psychiatrist and received regular blood tests to make sure they weren't lacking or having an excess of nutrients.

I do believe that nutrition is important, but I believe that more studies on nutrition need to be conducted and there is always a margin of error that needs to be accounted for. I have never seen a scientific study that has shown any findings to be 100%. I will repeat that I believe nutrition to be important to everyone, but I am not qualified to tell others how to cure epilepsy and neither are you. Take care.

Terry

Sent from my iPhone

On Apr 21, 2010, at 2:15 PM, "Shan" <surpriseshan2@ aol.com> wrote:

Medical doctor had less than one hour of teaching about nutrition - expecting an medical doctor to know about nutrition is like expecting an electrition to know how to make bricks or plumber how to prescribe drugs. If they know anything about it, it is only because they have a special interest in it.
What I said about magnesium can not be said about most nor even any vitamins nor minerals. There are things that magnesium does that calcium does not do and vice versa. There are things that calcium does that magnesium does not do and that vitamin A does not do and that vitamin D does not do and that B vitamins do not do , etc etc etc Lumping them all together is as intelligent as lumping all fruits together and saying they all taste the same.

FDA does not give approval to nutrients. And if you need their approval to take something that is beneficial to your body, then I feel sorry for you.

Years ago all the medical doctors said that the world was flat - in fact all the goverment offficials said the world was flat and so did all the teachers and priests and ministers and plumbers and electricians, and so did the military and lawyers and police etc etc. Fortunately there were a few people whom knew how to use their own brains and think for themselves, otherwise North American would not have been discovered as people were told it was dangerous to go past a certain area as they would fall off of the earth.

There are many forms of medicine besides what is passing for conventional medicine these days and what is called alternative medicine does use magnesium and other nutrients to cure and treat people naturally very successfully. If you wish to limit what you know to one form of medicine and way of thinking, that is your problem in my perception. Though unfortunately it will probably end up effecting your family too.

Many epileptics have more then one health issue - when anti-convulsants suppress the nervous systemn to stop seizures, they also suppress the immune system and respiratory system too. Plus magensium is involved in many raspects of metabolism as well most of the other systems of the body - so being deficient in magnesium is going to cause more then one symptom. This has been certainly illustrated in this group even.
And I have said many times here, that there are very few drugs that magnesium interferes with; though there are many drugs which do interfer with magnesium.

blessings
Shan

--- In epilepsy@yahoogroup s.com, Terry Martin <trm0818@... > wrote:
>
> Hi Shan,
>
> Since you have been telling us about magnesium, I have been doing some research on the internet. Magnesium deficiency may have a negative affect on our bodies which may help many diseases and disorders when brought up to normal levels. That can be said of many if not most vitamins and minerals. From my research, I cannot find FDA approval or recommendation to use magnesium to treat epilepsy or any other disease/disorder. I wish it were that simple.
>
> My doctors have advised me to take a multiple vitamin, and only one daily because the meds do deplete vitamins and minerals, but vitamins and minerals in excess of the recommended amounts can interfere with our meds. I have followed their advice to the letter and have not had a grand mal in 5 1/2 years. I also have other health problems, so I need to be careful about having anything interfere with my other meds.
>
> I am happy to hear that magnesium is working so well for you! It could be tragic for others to use in the ways that you are recommending. I urge everyone to discuss any changes with their doctors before making them. Magnesium is not a proven and recommended treatment for epilepsy. Take care.
>
> Terry
>
>
>
> Sent from my iPhone
>
> On Apr 21, 2010, at 1:18 AM, "Shan" <surpriseshan2@ ...> wrote:
>
> Millie
>
> If you are saying that you think you will have to reduce your drugs if you get your magnesium levels up - that is not true. If you want to continue taking your drugs, you can - it is up to the individual. You will not need the drugs if you get your magnesium levels up, but if you wish to continue taking your drugs because you feel safer that way, then do continue to take the drugs. And magnesuim will always protect you from having seizures as long as you keep your magnesium levels up. When I took drugs, they would stop me from having convulsions for about 10 years, and then I would have a dozy of a convulsion and most of the time we did not even know exacty what had caused it and why. Oh we knew that I was upset about something or other but we never knew why for 10+ years being upset hadn't caused me to have a seizure. Now I know that as long as I keep my magnesium levels up, it is physically impossible to have a seizure. Nature is much more reliable in
> my opinion and experiance, then anything artifical. All it takes is understanding how it works to realize that.
>
> It was not easy to reduce my drugs and I was scared stiff when I stopped them. I had been conditioned to believe that only drugs could stop the seizures. Two years after stopping the drugs and no seizures ,I was still holding onto the banisters when I went down the stairs as I worried what would happen if I had a convulsion on the stairs especially as now I live alone. One reason why I continue to find more studies and buy more books about magnesium is so I can confirm and assure myself that it is true what magnesium does and I keep reading how other doctors describe how it works too so I know it is not just one doctor's ideas... . I still need the comfit of reassuring myself. I hate that I was so conditioned that the only answer was drugs that I feel that way still every once in awhile. I do not like being manipulated and have absolutely no intention to give in to my fears though -anyways they are becoming less and less with time........ so now it is
> rarely that I have those fears anymore..
> blessings
> Shan
>
> --- In epilepsy@yahoogroup s.com, "Millie Myers" <mylmy@> wrote:
> >
> > I did not have surgery but I have been sz free for 3 1/4 years. I am on Dilantin and Phenabarb
> > and know that is what is keeping me sz free. So why would I want to use less and take a
> > chance on szs starting again?
> >
> > Millie
> >
> >
> >
> >
> >
> > ----- Original Message -----
> > From: Julie Hope
> > To: epilepsy@yahoogroup s.com
> > Sent: Sunday, April 18, 2010 11:51 PM
> > Subject: Re: [epilepsy] surgery statistics
> >
> >
> >
> > I think you are very wise Steve. You have had such good luck so far but cutting back or taking off I would be
> > afraid to do. By taking something at least you have a back-up in case it does come back in say a few years.
> > Nothing appears to last forever.
> > Keep smiling and a big congrats Steve!!
> >
> > Julie
> >
> > Julie Hope
> > epilepsyhealth@
> > http://www.2betrhea lth.com
> > ----- Original Message -----
> > From: "Steve" <stephenpales@ >
> > To: <epilepsy@yahoogroup s.com>
> > Sent: Sunday, April 18, 2010 8:48 PM
> > Subject: [epilepsy] surgery statistics
> >
> > Just wondering, has anybody seen studies done concerning reducing meds. after surgery as far as it being
> > successful or not successful in staying seizure free after surgery?
> >
> > My Dr. suggested to me to get totally off my Keppra (3000mg. each day)taking one year to do so. If then still
> > seizure free, cut back my Trileptal but not totally and remain on some the rest of my life. I said no to
> > reducing my meds. I'm still seizure free. Just interested in statistics concerning that. My Drs. said no
> > stats. where available since all surgeries are so different. Take care, keep a smile on your face!
> >
> > Steve
> >
> > ------------ --------- --------- ------
> >
> > Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply
> > to them. This is especially important if you are on digest. This not only helps out the list owner but, it
> > makes messages much easier to read when they arrive in our inboxes.
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

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